Appendix A:
Adult Burn Databases and Elements
| Variables | BMS | YABOQ | LIBRE | NBR | UDSMR | |||||
|---|---|---|---|---|---|---|---|---|---|---|
| Data Collection | Patient/Guardian Reported | Medical Abstraction | Patient/Guardian Reported | Medical Abstraction | Patient/Guardian Reported | Medical Abstraction | Patient/Guardian Reported | Medical Abstraction | Patient/Guardian Reported | Medical Abstraction |
| ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | |||
| Inclusion Criteria | Age: All age groups TBSA: ≥ 10% TBSA (≥ 65YRS); ≥ 20% TBSA (≥19; ≤64); or, electrical related burns; or, critical area burns Language Requirements: None Location: Burn Model Systems Extra: Wound closure surgery |
Age: 19-30; Injury after 17th birthday TBSA: >20% TBSA; or, critical area burns Language Req.: Yes (English) Location: Receiving care at Fraser Outpatient Center (MGH) Extra: Able to provide informed consent and injury occurred within 3 years of consent. |
Age: ≥18 TBSA: ≥5% TBSA; or, critical area burns Language Req.: Yes (English) Location: Lives in US or Canada Extra: None |
Age: All age groups TBSA: None Language Req.: N/A Location: ABA verified burn centers Extra: Sustaining one or more skin injuries with diagnosis code(requiring care at burn treatment facility); And, hospital admission defined as burn/trauma; or, patient transfer via EMS from one hospital to another hospital; or, death due to burn injury. |
Age: All age groups TBSA: None Language Req.: N/A Location: Participating inpatient rehabilitation facility Extra: Etiologic diagnosis of burns (941-946.5) |
|||||
| Gender/Sex | Male or Female: 1.Male 2. Female For participants who are transgender, chosen gender is coded rather than biological gender. |
Male or Female: 1.Male 2.Female |
Male or Female: 1.Male 2.Female |
Male or Female: 1.Male 2.Female For participants who are transgender, chosen gender is coded rather than biological gender. |
Male or Female: 1.Male 2.Female |
|||||
| Age | Date of birth is prompted; Age calculation is based on recorded date of burn injury and recorded date of birth. |
Date of birth is prompted; Age calculation is based on recorded date of burn injury and recorded date of birth. | Year of birth is prompted. Age estimation is based on recorded year of burn injury and recorded date of birth. | Date of birth is prompted; if left blank, age is to be input with units: 1.<1 Day unit is hours 2.<1 month unit is days 3. <3 years unit is months 4. <90 years unit is years 5. > or = 90 years is one group Age calculation can be from recorded date of burn injury and recorded date of birth. |
Date of birth is prompted. Age calculation is based on recorded date of burn injury and recorded date of birth. | |||||
| Ethnicity/Race | Race: 1. Black or African-American 2. Asian 3. Caucasian 4. American Indian/Alaskan Native 5. Native Hawaiian or Other Pacific Islander 6. More than one race 7. Other [text field] Ethnicity: 1. Hispanic or Latino 2. Not Hispanic or Latino |
Race: 1. White, non-Hispanic 2. Black, non-Hispanic 3. Hispanic/Latino 4. Pacific Islander 5. Asian 6. Native American 7. Other |
Race: 1. White 2. Black or African American 3. Asian 4. American Indian or Alaskan Native 5. Native Hawaiian or Pacific Islander 6. Multiracial 7. Other 8. Prefer not to answer Ethnicity: 1. Hispanic or Latino 2. Not Hispanic or Latino |
Allowed to check two races. 1. Asian 2. Native Hawaiian or other Pacific Islander 3. Other race 4. American Indian or Alaskan Native 5. Black or African American 6. Caucasian Ethnicity: 1. Hispanic or Latino 2. Not Hispanic or Latino |
Race / Ethnicity: 1. American Indian or Alaskan Native 2. Asian 3. Black or African American 4. Hispanic or Latino 5. Native Hawaiian or other Pacific Islander 6. White |
|||||
| Accommodation | Living situation at time of and post- injury is prompted. 1. House 2. Apartment 3. Mobile home 4. Institution 5. Homeless 6. Other |
Not Prompted | Current residence is prompted. 1. House 2. Apartment 3. Mobile Home 4. Institution 5. Homeless 6. Unknown 7. Other |
Housing at time of injury is prompted. 1. House/apartment 2. School dormitory 3. Skilled nursing facility 4. Adult group home 5. Institution/ prison 6. Homeless |
Admission location is prompted. 1. Home 2. Board & care 3. Transitional living 4. Intermediate care (nursing home) 5. Skilled nursing facility (nursing home) 6. Acute unit of your own facility. 7. Acute unit of another facility 8. Chronic hospital 9. Rehabilitation facility 10. Other 11. Alternate level of care (ALC) unit 12. Sub-acute setting 13. Assisted living residence |
|||||
| Living With | Living with for pre-and post-hospital is prompted. 1. Alone 2. Spouse/partner/significant other 3. Friend 4. Parent or step-parent 5. Other relative (siblings, grandparents) 6. Others, not part of family 7. Guardian 8. Young children 9. Adult children 10. Don’t know |
Not Prompted | Not Prompted | Living situation at time of injury is prompted. 1. Alone 2. Spouse, partner, or significant other 3. Parents 4. Other family member 5. Other, not listed |
Pre-hospital living with situation is prompted if admission is from home. 1. Alone 2. Family/ relatives 3. Friends 4. Attendant 5. Other |
|||||
| Work Status | Prompted employment status at time of burn and post-burn. 1. Working 2. Not working; looking for work 3. Not working; not looking for work 4. Homemaker/ caregiver 5. Volunteer 6. Retired |
Current work status outside of home is prompted. 1. Part-time 2. Full-time 3. Not currently working |
Current work status is prompted. 1. Working 2. Not working 3. Homemaker/ caregiver 4. Volunteer 5. Retired |
Not Prompted | Pre-hospital vocational effort is prompted. 1. Full time 2. Part time 3. Adjusted workload |
|||||
| Occupation | Occupation is prompted as [text field]; categories are presented in annotations1. | Job title is prompted; [text field] | Not Prompted | Occupation fields listed below in annotation2; Patient is allowed to choose a secondary occupation. | Pre-hospital vocational category is prompted. 1. Employed 2. Sheltered 3. Student 4. Homemaker 5. Not working 6. Retired for age 7. Retired for disability |
|||||
| Marital Status | Marital status is prompted. 1. Married (living with common- law or with a partner) 2. Separated 3. Divorced 4. Widowed 5. Single (not married) |
Marital status is prompted. 1. Married/live with significant other 2. Divorced/ separated 3. Widowed 4. Single (never married) |
Marital status is prompted. 1. Married/live with significant other 2. Divorced/ separated 3. Widowed 4. Single, never married |
Marital status is prompted. 1. Single 2. Married 3. Domestic partnership 4. Separated 5. Divorced 6. Widowed |
Marital status is prompted. 1. Never married 2. Married 3. Widowed 4. Separated 5. Divorced |
|||||
| Disability Income | Disability insurance or private Long Term Disability Insurance is prompted. Choose all that apply: 1. I am not receiving disability income 2. Social security disability 3. Private long term insurance disability income 4. Supplemental Security Income (SSI) 5. Worker’s compensation 6. Other, [text field] |
Not Prompted | Not Prompted | Not Prompted | Not Prompted | |||||
| Insurance | Primary sponsor is prompted. 1. Medicare 2. Medicaid (DSHS) 3. Private insurance 4. Worker’s compensation (L&J) 5. HMO/PPO/Pre-paid/ Managed Care 6. Champus/ Tri-Care 7. Self-pay 8. Indigent (public support; charity care) 9. VA 10. Other 11. Philanthropy (private support or private foundation) 12. Not applicable (no burn care costs) |
Current health insurance coverage is prompted. 1. Private or group health insurance or a health plan that you , your employer, or someone else provides for you 2. Other, [text field] 3. I don’t have any health insurance coverage |
Not Prompted | Primary source of payment for hospital care is prompted. 1. Medicaid 2. Not billed (for any reason) 3. Self-pay/ uninsured 4. Private/ commercial insurance 5. No fault automobile 6. Medicare 7. Other government 8. Worker’s compensation 9. Charity 10. Pending or uncovered |
Primary and secondary insurance is prompted. 1. Blue Cross 2. Medicare non-MCO 3. Medicaid non-MCO 4. Commercial insurance 5. MCO HMO 6. Worker’s compensation 7. Crippled children’s services 8. Developmental disabilities services 9. State vocational rehabilitation 10. Private pay 11. Employee courtesy 12. Unreimbursed 13. Champus 14. Other 15. None 16. No fault auto insurance 17. Medicare MCO 18. Medicaid MCO |
|||||
| Alcohol Use | CAGE test for alcohol abuse is prompted at discharge and follow ups. 1. Yes 2. No 3. Declined to answer/refused |
Alcohol problem is prompted in review of systems. 1. Had it 2. Get treatment 3. Activities limited. |
Not Prompted | Use of alcohol by the patient at the time of injury is prompted. 1. No (not tested) 2. No (tested) 3. Yes (tested-below legal limit) 4. Yes (tested-above legal limit) 5. Yes (not tested-clinical assessment or patient report but not tested) |
Not Prompted | |||||
| Drug Use | CAGE test for alcohol abuse is prompted at discharge and follow ups. 1. Yes 2. No 3. Declined to answer/refused 4. Unknown |
Drug problem is prompted in review of systems. 1. Had it 2. Get treatment 3. Activities limited |
Not Prompted | Drug usage prior to burn injury is prompted. 1. Not tested 2. No drug use, tested 3. Yes, prescription drug-tested 4. Yes, illegal drug-tested 5. Not known/not recorded (If suspected but not proven) Drug(s) found in blood/urine is prompted. 1. Barbiturates 2. Cannabis 3. Dissociative agents 4. Opiates 5. Sedatives 6. Stimulants 7. Tricyclic antidepressants 8. Other drugs |
Not Prompted | |||||
| Injury Date | Date of burn injury is prompted at discharge. | Date and time of burn injury is prompted. | Injury month, year, and time (listed below) since the burn is prompted. 1. <3 Years 2. 3-10 Years 3. >10 Years |
Date and time of burn injury is prompted. | Burn injury date prompted as onset of impairment. | |||||
| Admission to Care Date | Date of admission to Burn Model System is prompted. If applicable, date of second admission to Burn Model System is prompted at discharge. |
Date and time of admission to burn unit is prompted. | Not Prompted. | Admission date and time to burn center is prompted. | Admission date is prompted; defined as the date that the patient begins receiving covered Medicare services in an inpatient rehabilitation facility. | |||||
| Etiology | Primary etiology is prompted. 1. Fire/flame 2. Scald 3. Contact with hot object 4. Grease 5. Tar 6. Chemical 7. Hydrofluoric acid 8. Electricity 9. Radiation 10. UV light 11. Other burn 12. Flash burn 13. Unknown |
Not Prompted | Not Prompted | Etiology of burn injury is prompted. 1. Scald* 2. Flame* 3. Contact* 4. Electrical* 5. Chemical / corrosion* 6. Flash* 7. Other* *Each category is broken down into specific subcategories. |
Prompted as etiologic diagnosis ICD 9 codes. | |||||
| Total Body Surface Area (TBSA) | Numeric | Numeric | Numeric | Numeric | Not Prompted | |||||
| Severity (Burn Thickness) | Not prompted | 3rd degree burn percent is prompted. | Not Prompted | Prompted 2nd degree is defined as: 1. Burn involving a portion of the dermis. 2. Burn that heals spontaneously and does not require grafting for closure ,and 3. Burn that did not develop granulation. 3rd degree is defined as: 1. Burn involving the entirety of the dermis. 2. Burn requiring closure by excision and grafting, or 3. Burn that developed granulation tissue. |
Not Prompted | |||||
| Anatomic Injury Location (Burn) | Location is broken into categories to answer: 1. Head/Face/ Neck: a. Yes b. No c. Unknown 2. Trunk (back, chest, abdomen): a. Yes b. No c. Unknown 3. Perineum (buttock, genitals): a. Yes b. No c. Unknown 4. Shoulder/ Upper Arm /Elbow: a. Right b. Left c. Bilateral d. None e. Unknown 5. Forearm (includes wrist): a. Right b. Left c. Bilateral d. None e. Unknown 6. Hand: a. Right b. Left c. Bilateral d. None e. Unknown 7. Leg: a. Right b. Left c. Bilateral d. None e. Unknown 8. Foot: a. Right d. Left c. Bilateral d. None e. Unknown |
Anatomic burn location is prompted. 1. Face involved a. No b. Yes 2. Hands involved a. No b. Yes 3. Genitals involved a. No b. Yes |
Anatomic burn location is prompted. 1. Back 2. Face 3. Head 4. Neck 5. Hands 6. Feet 7. Legs 8. Torso/Trunk 9. Genitals 10. Arms 11. Other; [text field] |
Anatomic burn location of 2nd and 3rd degree burn: 1. Head 2. Neck 3. Anterior and posterior trunk 4. Buttocks 5. Genitalia 6. Upper arm 7. Lower arm 8. Hand 9. Thigh 10. Leg 11. Foot |
Location can be identified through respective ICD-9 Codes. | |||||
| Inhalation Injury | Inhalation injury is prompted. 1. Yes 2. No 3. Unknown |
Inhalation injury is prompted. 1. No 2. Yes |
Not Prompted | Inhalation injury is prompted. 1. No 2. Yes; with cutaneous burn injury 3. Yes; without cutaneous burn injury |
Not Prompted | |||||
| Non-Burn Injury | Not Prompted | Not Prompted | Not Prompted | Non-burn injury prompted and non-burn related cutaneous injury are prompted. 1. Toxic epidermal necrolysis/Stevens-Johnson Syndrome 2. Purpura Fulminans 3. Necrotizing soft tissue infection 4. Soft tissue de-gloving 5. Friction burn/crush (i.e. road rash) |
Prompted as ICD 9 codes. | |||||
| Geographic Injury Location | Location of injury is prompted. 1. Patient’s home 2. Other private dwelling 3. Patient’s place of work 4. Other building or structure 5. Conveyance (automobile, plane, etc.) 6. Other 7. Missing/unknown |
Not Prompted | Not Prompted | Incident location is prompted. 1. Zip or postal code 2. Country 3. State 4. County 5. City |
Not Prompted | |||||
| Circumstance of Injury | Circumstance of injury is prompted at discharge. 1. Non-intentional employment related 2. Non-intentional non-work related 3. Non-intentional recreation 4. Non-intentional non-specified 5. Suspected assault-domestic 6. Suspected assault-nondomestic 7. Suspected self-inflicted/ suicide 8. Suspected arson 9. Unknown Circumstance of injury is prompted again at follow ups. 1. Non-intentional employment related 2. Non-intentional non-work related 3. Non-intentional recreation 4. Non-intentional non-specified 5. Don’t know |
Not Prompted | Not Prompted | Circumstance of injury is prompted. Form Type A: 1. Accidental injury: employment related 2. Accidental injury: non-employment 3. Accidental: recreation 4. Accidental: unknown circumstance 5. Suspected arson 6. Suspected assault/abuse 7. Suspected self-inflicted 8. Other Form Type B: 1. Yes,primary occupation 2. Yes, secondary occupation 3. Not work-related |
Not Prompted | |||||
| Total Body Surface Area Grafted | Numeric | Not Prompted | Not Prompted | Not Prompted | Not Prompted | |||||
| Disposition of Discharge | Alive at discharge is prompted. 1. Yes 2. No Disposition is prompted. 1. Died, burn related 2. AMA/unable to complete treatment 3. Discharged, patient home 4. Discharged, other home 5. Discharged, extended care facility 6. Discharged, other rehab (not model system) 7. Discharged, institution 8. Discharged, drug/alcohol treatment center 9. Discharged, shelter 10. Discharged, street 11. Died, non-burn related 12. Other 13. Unknown |
Not Prompted | Not Prompted | Disposition of discharge is prompted. 1. Discharged home (prior living situation or with family members) with no home services. 2. Discharged home with home services 3. Discharged/ transferred to skilled nursing facility (SNF)/nursing home 4. Discharged/transferred to long-term care facility (e.g. Ventilator weaning/ 5. custodial care) Discharged to foster care 6. Discharged to alternate caregiver. 7. Transferred as inpatient to another acute burn facility 8. Transferred as inpatient to another hospital (non-burn) 9. Transferred to inpatient psychiatry unit 10. Transferred to inpatient rehabilitation facility 11. Discharged to jail or prison 12. Discharged to street (patient without home) 13. Died in hospital 14. Transferred to hospice care 15. Left against medical advice or discontinued care |
Discharge to living setting is prompted. 1. Home 2. Board and care 3. Transitional living 4. Intermediate care 5. Skilled nursing facility 6. Acute unit of own facility 7. Acute unit of another facility 8. Chronic hospital 9. Rehabilitation facility 10. Other 11. Died 12. Alternate level of care unit 13. Sub acute setting 14. Assisted living residence |
|||||
| Length of Stay | Length of hospital stay is prompted (based on date of admission and date of discharge). | Length of hospital stay can be calculated from date of admission and discharge from hospital for acute burn injury. | Not Prompted | Length of hospital stay can be calculated from date of admission and date of discharge. | Length of inpatient rehabilitation facility stay can be calculated from date of admission and date of discharge. | |||||
| Total ICU Days | Not Prompted | Not Prompted | Not Prompted | Number of days in ICU level care is prompted; partial days rounded up. Requires nurse to patient ratio of 1:1 or 1:2 and a bed at the ICU level at the designated hospital. | Not Prompted | |||||
| Ventilator Days | Numeric | Numeric; excludes days in surgery. | Not Prompted | Measured in days with partial days rounding up. Includes positive pressure, mechanical assistance via an artificial airway. Excludes OR time and up to 4 hours post-op, non-invasive means of ventilary support, and patients with artificial airways without positive pressure assistance. Allows for multiple start and stop dates in the calculations. | Not Prompted | |||||
| Comorbid Conditions | Another major injury that requires hospitalization (besides burn injury): 1. Yes 2. No 3. Don’t know |
Conditions prior to burn injury are prompted. 1. Had it 2. Get treatment 3. Activities limited a. Asthma b. Attention deficit hyperactivity disorder (ADHD) c. Chronic allergies or sinus trouble d. Diabetes e. Epilepsy (seizure disorder) f. Hearing problem g. Heart problem h. Learning problem i. Sleep problem j. Speech problems k. Vision problems l. Depression m. Drug problem n. Alcohol problem o. Smoking habit p. Pregnancy q. Anemia r. High blood pressure s. Stomach problems (ulcer) t. Liver problems u. Kidney problems v. Other medical problem |
Not Prompted | Pre-existing co-morbid factors are prompted. 1. Other 2. Alcoholism 3. Arthritis 4. Ascites within 30 days 5. Bleeding disorder 6. Chemotherapy for cancer within 30 days 7. Congenital anomalies 8. Congestive heart failure 9. Current smoker 10. Currently requiring or on dialysis 11. CVA/residual neurological deficit 12. Diabetes Mellitus 13. Disseminated cancer 14. Do Not Resuscitate (DNR) status 15. Esophageal varices 16. Functionally dependent health status 17. History of angina within past 1 month 18. History of myocardial infarction within past 6 months 19. History of revascularization / amputation for PVD 20. Hypertension requiring medication 21. Prematurity 22. Obesity 23. Respiratory disease 24. Steroid use 25. Cirrhosis 26. Dementia 27. Major psychiatric illness 28. Drug dependence 29. Pre-hospital cardiac Arrest with resuscitative efforts by healthcare provider 30. Wheel chair dependent |
Prompted as ICD 9 codes; [text field] | |||||
Annotations
Current BMS provided Categories: Census Industrial and Occupational Classification Codes: Fields of Occupation in BMS: Executive, Administrative, and Managerial/ Professional Specialty/ Technicians and Related Support/Sales/ Administrative Support Including Clerical/ Private Household/ Farming, Forestry, and Fishing/ Precision Production, Craft, and Repair/ Machine Operators, Assemblers, and Inspectors/ Transportation and Material Moving / Handlers, Equipment Cleaners, Helpers, and Laborers/ Military Occupations
Fields of occupation in NBR: Business and Financial Operations Occupations/Architecture and Engineering Occupations/Community and Social Services Occupation/Education, Training, and Library Occupations/ Healthcare Practitioners and Technical Occupations/ Fire Fighter/Protective Service Operations (Non-Fire Fighter)/Building and Grounds Cleaning and Maintenance/Sales and Related Occupations/Farming, Fishing, and Forestry Occupations/Installation, Maintenance, and Repair Occupations/Transportations and Material Moving Occupations/Management Occupations/Computer and Mathematical Occupations/ Life, Physical, and Social Science Occupations/Legal Occupations/Arts, Design, Entertainment, Sports and Media/Healthcare support Occupations/Food Preparation and Serving Related/ Personal Care and Service Occupations/ Office and Administrative Support Occupations/Constructions and Extraction Occupations/Production Occupations/Military Specific Occupations/Homemaker/Student/Unemployed