Table 1.

Stakeholder groups and methods of approaching potential participants

Stakeholder groups	Details	Approach methods
Patients/parents	Patients; parents/caregivers;a family members	Identified patients who participated in previous research of the OCOMEN project
		Call on social media and patient support organization websites for participation (˜4000 views)
		Collaboration with national and international patient advocates who used their network to invite patients
		Call for participants at the Naevus Global patient representative meeting (12 September 2019)
Professionals	Dermatologists; plastic surgeons; pathologists; neurologists; psychologists; researchers	Identified professionals who participated in previous OCOMEN project research
		Identification of names from the literature, attendance at meetings/conferences about paediatric dermatology/plastic surgery and through personal network of the OCOMEN team
		Participants were asked to suggest names of other professionals who may be interested in participating

OCOMEN, Outcomes for COngenital MElanocytic Naevi. ^aParents could complete the survey based on their own personal perspective or on behalf of their young child, in which case they needed to do the rating based on the child’s perspective.