TABLE 2.
AYA‐NA domain | Proportion of AYAs endorsing 1+ need | Proportion of items endorsedM (SD)Range | AYA‐NA item (as presented in the tool) | % Yes |
---|---|---|---|---|
Practical (5 items) (N = 219) | 67.6% | 24.1% (23.2)0%–100% | Housing or living arrangements | 14.6 |
Education c | 34.7 | |||
Work or career c | 28.8 | |||
Transport or parking | 13.7 | |||
Bills or finances | 28.8 | |||
Family (5 items) (N = 219) | 49.8% | 17.4% (21.7)0%–100% | Mum and/or dad c | 32.4 |
Brother(s) and/or sister(s) c | 23.3 | |||
Partner, boyfriend or girlfriend c | 16.0 | |||
Child (ren) | 4.1 | |||
Other family members c | 11.4 | |||
Emotional (11 items) (N = 219) | 78.5% | 20.1% (19.2)0%–91% | Sadness | 28.3 |
Feeling alone or isolated c | 16.4 | |||
Anxiety or fear | 33.3 | |||
Guilt c | 11.0 | |||
Boredom c | 46.1 | |||
Anger or frustration c | 25.1 | |||
Extreme moodiness c | 12.3 | |||
Feeling hopeless or helpless c | 16.4 | |||
Feeling confused c | 18.7 | |||
Loss of meaning or purpose c | 10.0 | |||
Loss of faith or spirituality | 3.2 | |||
Social (5 items) (N = 134 a ) | 69.4% | 25.2% (22.3)0%–100% | Isolated from friends c | 17.9 |
Missing important events c | 32.1 | |||
Friends don't understand c | 6.0 | |||
Worry about boy/girlfriend c | 21.1 | |||
Missing doing the ‘normal stuff’ with friends c | 49.3 | |||
Physical (19 items b ) (N = 219) | 84.9% | 19.8% (17.0)0%–89% | General appearance | 26.9 |
Hair loss c | 38.4 | |||
Breathing difficulty | 12.3 | |||
Fitness or sporting ability c | 29.2 | |||
Sleeping difficulty | 33.3 | |||
Constipation or diarrhoea | 22.8 | |||
Sexual concerns | 10.0 | |||
Loss of libido b , c | 9.7 | |||
Pain when having sex b , c | 4.5 | |||
Fertility c | 19.6 | |||
Eating or appetite | 29.2 | |||
Extreme exhaustion or tiredness c | 28.8 | |||
Memory or concentration | 18.7 | |||
Tingling in hands or feet | 11.9 | |||
Pain | 21.9 | |||
Nausea or vomiting | 26.9 | |||
High temperature or fever | 11.4 | |||
Use of alcohol and/or drugs c | 4.6 | |||
Other medical worry c | 6.9 | |||
Information (5 items) (N = 219) | 28.3% | 8.3% (15.6)0%–100% | Understanding of information c | 20.5 |
Feeling involved in decision making c | 6.8 | |||
Feeling listened to c | 7.8 | |||
Rights to confidentiality c | 1.8 | |||
Rights to privacy c | 4.6 |
Participants from the UK were not included in the social domain, as they used a different version of this subscale.
Participants from the UK completed the 17‐item, paediatric version of the AYA‐NA which excludes 2 items on sexual functioning in the physical domain.
Items that are new or modified (cf. the adult version).