Patients, n (%) |
184 (17.9) |
846 (82.1) |
− |
Gender, n (%) |
|
|
|
Male |
84 (45.7) |
454 (53.7) |
0.049 |
Female |
100 (54.3) |
392 (46.3) |
|
Age at diagnosis (median, IQR, range) |
14.1, 10.2–15.9, 2.3–17.9 |
31.8, 25.1–40.8, 18.0–79.6 |
<0.001 |
Age at enrollment (median, IQR, range) |
16.6, 13.3–24.9, 3.9–54.1 |
41.4, 32.5–51.8, 18.4–84 |
<0.001 |
Disease duration at enrollment (median, IQR, range), yr |
2.9, 0.9–11.0, 0.2–39.2 |
5.4, 1.8–12.4, 0–50.3 |
0.001 |
Age at latest follow-up (median, IQR, range) |
21.6, 16.4–30, 5.5–62.1 |
48, 38.3–58.4, 19.6–86.2 |
<0.001 |
Disease duration at latest follow-up (median, IQR, range), yr |
9.6, 4.2–17.1, 0.3–44.3 |
12.4, 7.4–19.2, 0.1–54.3 |
<0.001 |
Diagnostic delay (median, IQR, range), months |
4, 2–7.5, 1–168 |
3, 2–10, 0–360 |
0.873 |
Diagnostic delay categorization, n (%) |
|
|
|
Short delay (≤75th percentile) |
138 (75) |
635 (75.1) |
0.987 |
Long delay (>75th percentile) |
46 (25) |
211 (24.9) |
|
Disease location at diagnosis |
|
|
|
E1 (proctitis), n (%) |
16 (9.7) |
193 (25) |
<0.001 |
E2 (left-sided), n (%) |
41 (24.8) |
280 (36.3) |
|
E3 (pancolitis), n (%) |
108 (65.5) |
299 (38.7) |
|
Unknown/unclear |
19 |
74 |
|
Disease location at enrollment |
|
|
|
E1 (proctitis), n (%) |
13 (7.3) |
151 (18.2) |
<0.001 |
E2 (left-sided), n (%) |
51 (28.7) |
329 (39.7) |
|
E3 (pancolitis), n (%) |
114 (64) |
349 (42.1) |
|
Unknown/unclear |
6 |
17 |
|
Disease location at latest follow-up |
|
|
|
E1 (proctitis), n (%) |
20 (11) |
185 (22.1) |
<0.001 |
E2 (left-sided), n (%) |
46 (25.3) |
336 (40.1) |
|
E3 (pancolitis), n (%) |
116 (63.7) |
316 (37.8) |
|
Unknown/unclear |
2 |
9 |
|
Smoking status |
|
|
|
Smoking at enrollment, n (%) |
|
|
|
Yes |
20 (10.9) |
145 (17.1) |
0.036 |
No |
164 (89.1) |
701 (82.9) |
|
Smoking at last visit |
|
|
|
Yes, n (%) |
17 (9.9) |
97 (12.9) |
0.286 |
No, n (%) |
154 (90.1) |
654 (87.1) |
|
Missing |
13 |
95 |
|
Ever smoked, n (%) |
|
|
|
Yes |
32 (17.4) |
285 (33.7) |
<0.001 |
No |
152 (82.6) |
561 (66.3) |
|