Table 1.
Sociodemographic data | ||||||
---|---|---|---|---|---|---|
Parents | Total (n = 516) | Fathers (n = 217) | Mothers (n = 299) | |||
M | SD/range | M | SD/range | M | SD/range | |
Age in years a | 39.4 | 7.3/20-70 | 41.1 | 7.6/23-70 | 38.2 | 6.9/20-64 |
n | % | n | % | n | % | |
Permanent relationship | 472 | 91.5 | 209 | 96.3 | 263 | 88.0 |
Education b | ||||||
> 10 years | 248 | 50.4 | 106 | 52.0 | 142 | 49.3 |
≤ 10 years | 244 | 49.6 | 98 | 48.0 | 146 | 50.7 |
Employment status c | ||||||
Gainfully employed | 365 | 72.1 | 197 | 92.5 | 168 | 57.3 |
Full-time | 208 | 57.0 | 177 | 89.8 | 31 | 18.5 |
Part-time | 157 | 43.0 | 20 | 10.2 | 137 | 81.5 |
Not gainfully employed | 104 | 20.6 | 11 | 5.2 | 93 | 31.7 |
Homemakers | 65 | 62.5 | 1 | 9.1 | 64 | 68.8 |
(Re)Training | 4 | 3.8 | 0 | 0 | 4 | 4.3 |
Seeking employment | 30 | 28.8 | 7 | 63.6 | 23 | 24.7 |
Retired | 5 | 4.8 | 3 | 27.3 | 2 | 2.2 |
Other, e.g., parental leave | 37 | 7.3 | 5 | 2.3 | 32 | 10.9 |
Patients | Total (n = 305) | Boys (n = 170) | Girls (n = 135) | |||
M | SD/range | M | SD/range | M | SD/range | |
Age in years | 7.3 | 4.3/1-18 | 7.9 | 4.5/1-18 | 6.6 | 4.0/1-17 |
Time since diagnosis in months | 22.1 | 21.8/5-178 | 22.1 | 21.3/5-152 | 22.2 | 22.5/5-178 |
n | % | n | % | n | % | |
Number of siblings | ||||||
0 | 59 | 19.3 | 29 | 17.1 | 30 | 22.2 |
1–2 | 222 | 72.8 | 124 | 72.9 | 98 | 72.6 |
> 2 | 24 | 7.9 | 17 | 10.0 | 7 | 5.2 |
Cancer diagnosis | ||||||
CNS tumor | 157 | 51.5 | 89 | 52.4 | 68 | 50.4 |
Leukemia | 148 | 48.5 | 81 | 47.6 | 67 | 49.6 |
Other chronic diseases or impairments, e.g., epilepsy, hemiparesis d | 82 | 27.0 | 46 | 27.2 | 36 | 26.7 |
a2 missings, b24 missings, c10 missings, d1 missing