Figure 1.

(a) The DECIPHER community is a global network of academic clinical centers with expertise in genetics. Depositing centers are able to send messages directly to other registered users about patient matches through DECIPHER. Since October 2014 over 4500 such messages have been sent. Here, each line represents a collaboration request sent between depositing centers. Unregistered users’ messages, sent through DECIPHER, are not included in this image. (B) The DECIPHER database currently openly shares approx. 40,000 rare disease patient records, built up over time