Table 2.
Key qualitative interview findings: ease of use | Quotes reflecting patterns among overall participants | Quotes reflecting differences between Black and White participants (where applicable) |
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Participants generally reported positive experiences using the ePRO system, but noted a few key challenges (e.g., understanding some questions). Black participants noted that the ePRO system was initially challenging to use more often than White participants | “I don’t think any of it was hard. It was easier than any other type of thing like that than I’ve done.” (White participant) |
Black: “When I first started out, I didn’t understand some of the questions. Then I asked the nurse and she told me what to do. Then I was good to go.” (Black participant) White: “It was really not hard at all.” (White participant) |
Generally, participants described preferences for completing the survey online for convenience, but Black participants described preferences for completing it by phone or paper (if given the option) | “I think it’s easier to use the online... ” (White participant) |
Black: “[I’d prefer the paper-based survey] because I’d have more time to sit and look at it and read it and think about it before I answered... ” (Black participant) White: “Because online is all right there. It’s easier. It transfers farter. It’s what I’m used to. I mean, paper is kind of not—it’s kinda going away.” (White participant) |
Participants noted a few key barriers to completing the survey, such as technical difficulties with their cell phone reception or the integrated voice response system or being used for telephone survey completion | “...There was some sort of technical difficulty at... their end of it. Because it just went blank on me... where the phone call is made, and the beginning of the survey is just—it was like there was something wrong technically at the other end, because the phone just went dead (White participant).” | N/A (key barriers were consistent among Black and White participants) |
Participants were divided about their preferences for completing the survey at home (so they would have more time) or in the clinic (so they could ask questions to the staff and/or complete it while waiting for their appointment) | “It was probably more convenient at home to do it on your time, plus you could stop, come bark, finish if somethin’ came up or somethin’ you had to do.” (White participant) “...I liked it better when I was in the clinic ’cause I already had that time to do it.” (Black participant) |
N/A |
Overall, participants reported that the Symptom Summary was easy to understand. Among the participants who did report challenges in understanding the Symptom Summary, Black participants more often reported challenges related to their general understanding, whereas White participants reported more specific challenges (e.g., confusion about acronyms used and the numbers included) | “It [understanding the Symptom Summary] was pretty easy for me.” (White participant) |
Black: “I didn’t understand it. I remember seein’ that now.” (Black participant) White: “I mean, I’m totally at a loss. There’s another one about anxiety, and my answers are 51.2, 51.2 and 51.2. Now, I answered—I had probably six choices with anxiety, and I’ve got, somehow, an answer of 51.2. It’s just, like, it just doesn’t make any sense whatsoever.” (White participant) |