TABLE 1.
Survey sections and descriptions
| Section | Description |
|---|---|
| 1. Demographics | Questions about gender, education level, ethnicity and place of residence |
| 2. NASH diagnosis | Questions around the NASH diagnosis process (e.g., healthcare provider responsible for diagnosing, tests involved and information provided) |
| 3. Putting communication around NASH into context | Questions about interactions with and information received from healthcare providers, and the availability and quality of information in general, regarding health conditions like NASH and others (e.g., T2D, heart disease and obesity), and how this translates into treatment adherence (i.e., lifestyle adjustments) |
| 4. NASH experiences & ‘IQ’ | Questions around living with NASH (e.g., feelings about the diagnosis; understanding of the condition, its impact on health and its progression; types of health providers involved in its management and level of care received; and information and support received around treatment [i.e., lifestyle changes]) |
| 5. NASH communication deep dive | Questions about the specifics of information received around NASH (e.g., terms used upon diagnosis [i.e., liver fibrosis, cirrhosis and cancer] and level of understanding of these) and level of comfort in disclosing information about NASH and other diagnoses (e.g., T2D, heart disease and obesity) to others (i.e., family, friends and co‐workers) |
| 6. NASH’s impact on daily life | Questions around the impact of NASH on daily life (e.g., on health, mood, self‐care, activities of daily living, work, leisure and interactions with others [i.e., friends and family]) |
Notes: Prior to the main survey, participants answered screening questions (e.g., age, diagnosis/diagnoses received [e.g., T2D, high blood pressure, hyperlipidaemia and NASH], level of knowledge about their health status in relation to these [e.g., haemoglobin A1C, blood pressure and cholesterol levels, and liver function test results] and their interpretation of this information [i.e., how advanced they perceived their health condition to be based on this information]).
Abbreviations: IQ, intelligence quotient; NASH, non‐alcoholic steatohepatitis; T2D, type 2 diabetes.