Table 3.

Self‐reported characteristics of patients with hidradenitis suppurativa (HS), overall and by sex

	Total (n = 1156)	Female (n = 850)	Male (n = 306)
Age at beginning of HS (years), median (IQR)	25.0 (17.8–40.0)	24.0 (16.0–38.0)	30.0 (19.0–45.0)
Missing	41	21	20
Disease duration (years), median (IQR)	21.0 (10.8–33.0)	22.0 (11.0–33.0)	19.0 (8.0–34.0)
Missing	41	21	20
Affected areas
Armpit(s)	348 (30.1)	272 (32.0)	76 (24.8)
Under the breasts	71 (6.1)	70 (8.2)	< 10 (< 3.3)
Groin	599 (51.8)	509 (59.9)	90 (29.4)
Sexual organs	341 (29.5)	308 (36.2)	33 (10.8)
Anal region	289 (25.0)	193 (22.7)	96 (31.4)
Other	266 (23.0)	128 (15.1)	138 (45.1)
Self‐reported Hurley stage
Hurley I	817 (72.0)	602 (71.7)	215 (73.1)
Hurley II	249 (22.0)	191 (22.7)	58 (19.7)
Hurley III	68 (6.0)	47 (5.6)	21 (7.1)
Missing	22	10	12
Disease course
Improvement	468 (40.9)	357 (42.3)	111 (37.0)
Deterioration	145 (12.7)	104 (12.3)	41 (13.7)
Not better or worse	452 (39.5)	329 (39.0)	123 (41.0)
Remission	38 (3.3)	26 (3.1)	12 (4.0)
Other	41 (3.6)	28 (3.3)	13 (4.3)
Missing	12	< 10	< 10
Family members with HS
Yes	110 (25.2)	87 (26.9)	23 (20.5)
No	154 (35.3)	116 (35.8)	38 (33.9)
Do not know	172 (39.4)	121 (37.3)	51 (45.5)
Missing	720	526	194
Diagnosed by
General practitioner	204 (46.6)	151 (46.5)	53 (46.9)
Dermatologist	154 (35.2)	110 (33.8)	44 (38.9)
Surgeon	27 (6.2)	20 (6.2)	7 (6.2)
Plastic surgeon	< 10 (< 0.9)	< 10 (< 1.2)	< 10 (< 3.3)
Gynaecologist	< 10 (< 0.9)	< 10 (< 1.2)	< 10 (< 3.3)
Emergency room doctor	< 10 (< 0.9)	< 10 (< 1.2)	< 10 (< 3.3)
Patient	32 (7.3)	25 (7.7)	<10 (< 3.3)
Other	< 10 (< 0.9)	< 10 (< 1.2)	< 10 (< 3.3)
Missing	718	525	193

The data are reported as n or n (%) unless stated otherwise. IQR, interquartile range.