Table 6.
Key Themes identified listed by analysis groups regarding the urgency of results called -out to PCPs from the newborn screening program; themes identified by at least 30% of the group are represented by one figure; themes identified by at least 60% of the group are represented by two figures.
| CF Early (n = 16) |
CF Late (n = 12) |
NBS Early (n = 11) |
NBS Late (n = 6) |
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|---|---|---|---|---|---|
| Urgency of call-out for number of variants identified on NBS | More urgent for 2 variants |
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| Less urgent for 1 variant |
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| 2 variants: notify PCP, specialists quickly |
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| 1 variant: note carrier status and less urgency on notifying and scheduling |
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| 2 variants: sweat test scheduled quickly |
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| Treatment initiated (possibly before sweat test) for 2 variants or 1 variant with symptoms. |
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