Table 2.
Overview of the identified themes and associated quotes (Step 1), and the adjusted names for the engagement game (Step 2).
Identified themes | Name in the game | Quotes |
---|---|---|
Visiting the hospital | My hospital | ‘I like the shops in the hospital’. |
‘The things they organize for patients are very nice so I won't get bored’. | ||
Participating | I can (not) do this | ‘When I'm admitted to the hospital, it feels like I'm missing a few weeks of my life’. |
‘I miss normal things, like hanging out with friends or going to school’. | ||
Disease & treatment | My disease & treatment | ‘I don't like that I am getting tired due to the antibiotics that I have to take’. |
‘They made some mistakes in my treatment, for example once I got too much morphine’. | ||
Social environment | Me & others | ‘It is nice when people sympathize, because then I know that there are people who care about me’. |
‘My friends always tell me that they can't imagine how it is to have juvenile arthritis’. | ||
Feelings | I feel this | ‘I was always really afraid that something was wrong when I got the results back’. |
‘It feels very lonely when you think about your friends who are not sick’. | ||
Dealing with staff | The people in my hospital | ‘Sometimes doctors talk for hours and ask a lot of questions. I don't want that’. |
‘I like doctors and nurses to be honest, don't tell me that it won't hurt if it will hurt’. | ||
Acceptation | I am okay | ‘I just want to be normal, I want to participate in class and not feel tired or sick’. |
‘I feel a bit of an outsider’. | ||
Autonomy | I do (not do) it myself | ‘Because I am young, they don't take me seriously. That is annoying’. |
‘I take care of myself’. | ||
Disclosure | Talk about it | ‘I'm not willing to tell my life story’. |
‘I like to share my story’. | ||
Chronically ill peers | Just like me | ‘They understand me better than my normal friends’. |
‘Kids who are sick too are more interested in my illness’. |
Note: All quotes were translated into English.