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. 2022 Jun 24;25(4):1861–1871. doi: 10.1111/hex.13530

Table 2.

Overview of the identified themes and associated quotes (Step 1), and the adjusted names for the engagement game (Step 2).

Identified themes Name in the game Quotes
Visiting the hospital My hospital ‘I like the shops in the hospital’.
‘The things they organize for patients are very nice so I won't get bored’.
Participating I can (not) do this ‘When I'm admitted to the hospital, it feels like I'm missing a few weeks of my life’.
‘I miss normal things, like hanging out with friends or going to school’.
Disease & treatment My disease & treatment ‘I don't like that I am getting tired due to the antibiotics that I have to take’.
‘They made some mistakes in my treatment, for example once I got too much morphine’.
Social environment Me & others ‘It is nice when people sympathize, because then I know that there are people who care about me’.
‘My friends always tell me that they can't imagine how it is to have juvenile arthritis’.
Feelings I feel this ‘I was always really afraid that something was wrong when I got the results back’.
‘It feels very lonely when you think about your friends who are not sick’.
Dealing with staff The people in my hospital ‘Sometimes doctors talk for hours and ask a lot of questions. I don't want that’.
‘I like doctors and nurses to be honest, don't tell me that it won't hurt if it will hurt’.
Acceptation I am okay ‘I just want to be normal, I want to participate in class and not feel tired or sick’.
‘I feel a bit of an outsider’.
Autonomy I do (not do) it myself ‘Because I am young, they don't take me seriously. That is annoying’.
‘I take care of myself’.
Disclosure Talk about it ‘I'm not willing to tell my life story’.
‘I like to share my story’.
Chronically ill peers Just like me ‘They understand me better than my normal friends’.
‘Kids who are sick too are more interested in my illness’.

Note: All quotes were translated into English.