Table 1.
Main characteristics of participants in DECISIONS-SMA
| Characteristics | N = 35 |
|---|---|
| Age, years, mean (SD) | 40.6 (9.6) |
| Age ≥ 40 years old, n (%) | 16 (45.7) |
| Sex, female, n (%) | 22 (62.9) |
| Years of experience as pediatric neurologists, mean (SD) | 11.5 (9.1) |
| Years of experience managing SMA, mean (SD) | 8.9 (7.9) |
| Patients with SMA managed per week, mean (SD) | 1.5 (2.2) |
| Specialist in neuromuscular diseases, n (%) | 14 (40.0) |
| Practice setting, specialized SMA clinic, n (%) | 12 (34.3) |
| Participation in clinical trials, n (%) | 11 (31.4) |
| Authorship of scientific manuscripts in peer-reviewed journals/congresses, n (%) | 16 (45.7) |
| Behavioral characteristics | |
| Physician’s tolerance to uncertainty score, mean (SD) | 9.7 (4.6) |
| Participants with low tolerance to uncertainty, n (%) | 10 (28.6) |
| Aversion to ambiguity score, mean (SD) | 3.0 (1.3) |
| Participants with ambiguity aversion, n (%) | 20 (57.1) |
SMA spinal muscular atrophy, SD standard deviation