Table 1.
Interview section | Exemplar questions or probes |
---|---|
Symptoms: open-ended | What were the first symptoms you experienced that led you to believe that something was wrong? |
What symptoms prompted you to seek medical attention? | |
What symptoms led to you getting diagnosed? | |
What symptoms do you currently experience? | |
What is an average day with [symptom] like? What is a good day with [symptom] like? What is a bad day with [symptom] like? | |
Does [symptom] change from day to day? During the course of 1 day? | |
How long does [symptom] last? (e.g., minutes, hours, days?) | |
How has the symptom changed over time since it was first experienced? | |
Symptom: probes |
Mobility (in general any problems with body movements) Upper limb (arms, hands)?—specifically dexterity/fine motor issues Lower limb (legs, feet)? Smoothness of gait (e.g., leg dragging)? |
Impact: open-ended | How does PD affect your life or the things you did on a typical day? |
Are some days better than others? If so: | |
How does PD affect your life on a “bad” day? What aspects of your life/activities are affected on a “bad” day? | |
How does PD affect your life on a “good” day? What aspects of your life/activities are affected on a “good” day? | |
Did PD affect you differently when you first noticed the symptoms or prior to you starting treatment? If so in what way? | |
Impact: probes | Does PD ever affect your broad daily functioning activities? |
Handwriting or typing | |
Buttoning up your clothing | |
Folding clothing | |
Shoelaces | |
Household chores | |
Using utensils/preparing meals | |
Driving | |
Exercise or participation in sports | |
Hobbies |
PD Parkinson’s disease