Table 2. Participant Preferences for Notification About Use of Identified or Deidentified Health Information and Biospecimens by Commercial Companies and University Researchers (N = 2054).
| Question | For you, how true are the following statements: I would like to be notified about [I] using my [II] [III]. | Mean (95% CI)a | P value | ||
|---|---|---|---|---|---|
| I | II | III | |||
| A | Commercial companies | Identified | Biospecimens | 3.45 (3.41-3.50) | |
| B | Commercial companies | Deidentified | Biospecimens | 2.94 (2.89-2.30) | |
| C | Commercial companies | Identified | Health information | 3.45 (3.41-3.49) | |
| D | Commercial companies | Deidentified | Health information | 2.96 (2.91-3.01) | |
| E | University researchers | Identified | Biospecimens | 3.37 (3.33-3.41) | |
| F | University researchers | Deidentified | Biospecimens | 2.76 (2.71-2.81) | |
| G | University researchers | Identified | Health information | 3.44 (3.40-3.48) | |
| H | University researchers | Deidentified | Health information | 2.77 (2.72-2.83) | |
| Comparison of composite indexes of preference for notificationb | |||||
| Index 1 | Index 2 | Mean difference (95% CI) | |||
| Questions used in index | Mean (95% CI)a | Questions used in index | Mean (95% CI)a | ||
| All commercial companies (A, B, C, D) | 3.20 (3.16-3.24) | All university researchers (E, F, G, H) | 3.09 (3.05-3.12) | 0.12 (0.09-0.14) | <.001 |
| All identified materials (A, C, E, G) | 3.43 (3.39-3.46) | All de-identified materials (B, D, F, H) | 2.86 (2.80-2.90) | 0.57 (0.52-0.61) | <.001 |
| All health information (C, D, G, H) | 3.15 (3.12-3.19) | All biospecimens (A, B, E, F) | 3.13 (3.10-3.17) | 0.02 (0.00-0.04) | .01 |
a
Mean responses on the following Likert scale: 1 = not true; 2 = somewhat true; 3 = fairly true; 4 = very true.
b
Indexes are generated as the sum of participants’ answers to questions A through H divided by the number of questions answered.