Table 1.
Clinical and demographic features
| Clinical and demographic feature | Value |
|---|---|
| Female gender, n (%) | 359/430 (83) |
| Ethnicity, n (%) | |
| White British | 218/430 (51) |
| Asian | 129/430 (30) |
| African/Caribbean | 72/430 (17) |
| Age at diagnosis, median (IQR), years | 12.8 (10.4, 14.6) |
| Disease duration, median (IQR), years | 2.0 (0.7, 4.0) |
| Number of visits per patient, median (IQR) | 10 (5, 15) |
| ACR criteria at diagnosis, median (IQR) | 5 (5, 7) |
| ANA positivity at study recruitment, n (%) | 396 (92) |
| Anti-dsDNA positivity at study recruitment, n (%) | 294 (69) |
| SDI score at study recruitment (individual patients), n (%) | |
| No damage 0 | 344 (80) |
| Mild damage (1) | 49 (11) |
| Moderate damage (2) | 9 (2) |
| Severe (≥3) | 8 (2) |
| SDI score during all follow-up visits, n (%) | |
| No damage (SDI = 0) | 3150 (71) |
| Mild (SDI = 1,2) | 1067 (24) |
| Moderate—severe (SDI > 3) | 228 (5) |
Self-reported ethnicity information was collected in accordance with the UK National Census categorizations. Data of patients who were of mixed race were grouped with those of the associated ethnic minority group. Ethnicity data not available for 11 patients. SDI score at study recruitment not available for 20 patients. IQR: interquartile range; SDI: SLICC Standardized Damage Index.