TABLE 1.
Interviewee demographics
| Patients (n = 23) | Family members (n = 10) | Oncology HPs (n = 19) | Cancer NGO representatives (n = 7) | |
|---|---|---|---|---|
| Sex | ||||
| Female | 18 (78.3%) | 9 (90.0%) | 19 (100%) | 7 (100%) |
| Male | 5 (21.7%) | 1 (10.0%) | ||
| Marital status | ||||
| Single | 3 (13.0%) | |||
| Married/de facto | 16 (69.6%) | |||
| Separated/divorced | 4 (17.4%) | |||
| Relationship to patient | ||||
| Spouse/partner | 9 (90.0%) | |||
| Parent | 1 (10.0%) | |||
| Born in Australia | 17 (73.9%) | 8 (80.0%) | 17 (89.5%) | 6 (85.7%) |
| Current location | ||||
| NSW | 11 (47.9%) | 5 (50.0%) | 10 (52.6%) | 3 (42.9%) |
| VIC | 5 (21.7%) | 5 (26.3%) | 4 (57.1%) | |
| SA | 3 (13.1%) | 4 (40.0%) | 1 (5.3%) | |
| WA | 2 (8.7%) | 1 (10.0%) | 2 (10.5%) | |
| QLD | 1 (4.3%) | 1 (5.3%) | ||
| Education | ||||
| Secondary school | 5 (21.7%) | |||
| Vocational training | 6 (26.1%) | 2 (20.0%) | 1 (5.3%) | |
| University | 12 (52.2%) | 8 (80.0%) | 18 (94.7%) | 7 (100%) |
| Employment | ||||
| Unable to work | 2 (8.7%) | |||
| Unemployed | 2 (8.7%) | 2 (20.0%) | ||
| Job keeper | 1 (4.3%) | |||
| Part time | 3 (13.9%) | 4 (40.0%) | 8 (42.1%) | 4 (57.1%) |
| Full time | 4 (17.4%) | 1 (10%) | 11 (57.9%) | 3 (42.9%) |
| Retired | 11 (47.8%) | 3 (30.0%) | ||
| Occupation | ||||
| Allied health | 1 (5.3%) | |||
| Counselor | 2 (10.5%) | |||
| Medical oncologist | 2 (10.5%) | |||
| Nurse/cancer care coordinator | 7 (36.8%) | 4 (57.1%) | ||
| Palliative care physician | 2 (10.5%) | |||
| Peer support consultant | 1 (14.3%) | |||
| Program leader | 2 (28.6%) | |||
| Psychologist | 4 (21.1%) | |||
| Social worker | 1 (5.3%) | |||
| Time since diagnosis (at consent) | ||||
| < 1 year | 8 (34.8%) | |||
| 1–5 years | 12 (52.2%) | |||
| > 5 years | 3 (13.0%) | |||
| Cancer type | ||||
| Breast | 8 (34.8%) | |||
| Prostate | 5 (21.7%) | |||
| Lung | 4 (17.4%) | |||
| Bowel | 2 (8.7%) | |||
| Other | 7 (30.4%) | |||
| Cancer stage | ||||
| Local | 10 (43.5%) | |||
| Locally advanced | 4 (14.9%) | |||
| Metastatic | 6 (26.1%) | |||
| Other | 3 (13.0%) | |||
| Currently on treatment | ||||
| Not completed | 9 (39.1%) | |||
| Less than 6 months | 12 (52.2%) | |||
| More than 6 months a | 2 (8.7%) | |||
| Treatments received | ||||
| Chemotherapy | 11 (47.8%) | |||
| Hormone therapy | 8 (34.8%) | |||
| Immunotherapy | 1 (4.3%) | |||
| Radiation therapy | 15 (65.2%) | |||
| Surgery | 17 (73.9%) | |||
| Targeted therapy | 5 (21.7%) | |||
| Own medical condition | 6 (60%) | |||
| Age at consent | ||||
| Median | 61 years | 60.5 years | 52 years | 45 years |
| Range | 35–77 years | 51–74 years | 29–75 years | 31–64 years |
a
Two participants had completed all treatment more than 6 months ago, except for ongoing hormone therapy.