Table 2.
Caregiver Reports of Medication-Taking Barriers at Baseline
| Medication-Taking Barriers | R1 | R2 | R3 | R4 | R5 | R6 | R7 | R8 | R9 |
|---|---|---|---|---|---|---|---|---|---|
| Child medication refusal or avoidance | Ignores parental instructions | Barrier not reported | Tantrums; Spits out medicine | Tantrums; Spits out medicine; Will not open mouth for medicine | Barrier not reported | Tantrums; Runs away from parent; Spits out medicine; Will not open mouth for medicine | Tantrums; Hides; Runs away from parent; Spits out medicine; Will not open mouth for medicine | Tantrums; Tries to delay | Runs away from parent; Will not open mouth for medicine |
| Medication Schedule/Forgetting | Difficulties coordinating across multiple caregivers | Barrier not reported | Barrier not reported | Difficulties managing consistent medication timing; Difficulties managing medication schedule and schedules/needs of other children. | Barrier not reported | Barrier not reported | Barrier not reported | Uses phone timer, sometimes forgets | Barrier not reported |
| Unclear Medication Instructions | Barrier not reported | Refers to other cancer parents and asked questions to providers | Questions about dosing, asked nurses | Unclear when to use some medications as preventative versus symptom management | Unclear how to deal with medication side effects | Barrier not reported | Unclear if certain medications can be given together | Barrier not reported | As needed with pain medications has been confusing to navigate |
| Ensuring Medication Supply/Refills | Barrier not reported | Difficulties coordinating across multiple caregivers | Barrier not reported | Barrier not reported | Barrier not reported | Barrier not reported | Barrier not reported | Barrier not reported | Barrier not reported |