Table 3.

Domains of needs of people with a rare disease addressed by each app.

			Total domains, N=6		Need domains
					Social support		Tools for improving consults with health professionals		High-quality information on rare disorders		Tools to support self-management		Sharing patient data with the health team or improving coordination of care or both		Facilitate contribution to a global research database or registry
Total			54		4		7		17		17		7		3
App name
	Narcolepsy Monitor	2				✓				✓		✓
	Cure SMA guide	6		✓		✓		✓		✓		✓		✓
	Cystic Fibrosis Manager	4				✓		✓		✓		✓
	Project Breathe or Breathe RM	1								✓
	RarePulse	2						✓						✓
	PatientMpowerment for CF	3								✓		✓		✓
	RareGuru	2				✓				✓
	MicroHealth Hemophilia	2								✓		✓
	Cystinosis & me	2				✓				✓
	Spina Bifida Association	2						✓		✓
	HaemActive	2								✓
	PBC Health Storylines	2								✓		✓
	ThalTracker	2								✓		✓
	CANrecall	2				✓				✓
	THALIA app	3				✓		✓		✓
	VASCERN app	2		✓				✓
	ThaliMe	2		✓						✓
	Cystic Fibrosis Downhill	1						✓
	Cystic Fibrosis: A Pocket Guide	1						✓
	PH Aware	1						✓
	Haemophilia Pal	1								✓
	MyHemophiliaTeam	2		✓				✓
	Autogenic Drainage	1								✓
	Recognize Amyloidosis Disease	1						✓
	Recognize Thalassemia Disease	1						✓
	Easy Diagnosis- Thalassemia	1						✓
	Narcolepsy Disorder	1						✓
	Hemophilia Disease	1						✓
	Thalassemia Disease	1						✓