Table 1.
Semi-structured interview guide.
| General information about the participant | ||
|---|---|---|
| Name: | ||
| Age: | ||
| Profession: | ||
| Place of residence: | ||
| Diagnosis: | ||
| Family situation: | ||
| Topic List | ||
| The topic list was drawn up to prepare more specific questions which can be asked during the interviews. Since the interviews will be semi-structured, the questions are only a guideline and the topic list can help the researcher think about other questions during the interview, as long as they line up with the topics mentioned in this list. This to make sure that only topics that reflect on the research question will be discussed. | ||
| Topic | Subtopic | More specific |
| Activities | Meaningful activities | Work/education |
| Leisure time | ||
| Selfcare | ||
| Performance of activities | General performance | |
| Specific problems | ||
| EDS | Experiences | Influence of the diagnosis |
| Self-image | ||
| Limitations | Physical | |
| Social | ||
| Benefits | Physical | |
| Social | ||
| Relationships | Formal relationships | Acceptance of others |
| Informal relationships | Making friends | |
| Social activities | ||
| Intimate relationships | ||
| Communication | Contact with others | |
| Help | Asking help | |
| Accepting help | ||
| Giving help | ||