Table 4.
Themes.
| 1. Relationships are affected in persons with hEDS or HSD |
| 2. Having hEDS or HSD influences how to ask for, accept and give help |
| 3. People with hEDS or HSD can no longer do what they want to do and that affects their identity |
| 4. People with hEDS or HSD must find a balance in the amount of activities they participate in |