Table 2A.
Theme n = number of utterances % of Barriers |
Subtheme | Description |
Father's utterances n (% of total) |
HCPs' utterances n (% of total) |
Total utterances n (% of Theme) |
---|---|---|---|---|---|
Factors related to fathers N = 34 39.1% |
Uninvolved or disengaged | Fathers who are uninvolved and/or disengaged in the healthcare of their child (e.g., during medical visits) | 0 (0) | 7 (100) | 7 (20.5) |
Rigid working schedule and stress level | Fathers' working schedule and stress levels that limit the possibility of interactions and involvement in the healthcare of their child. | 2 (28.5) | 5 (71.4) | 7 (20.5) | |
Unhelpful personality traits | Fathers' personality traits impeding communication and parent-professional relationship building (e.g., too demanding, dismissive, imposing). | 0 (0) | 6 (100) | 6 (17.6) | |
Denial | Fathers who are in denial about their child's challenges or who have difficulty accepting the situation. | 1 (16.7) | 5 (83.3) | 6 (17.6) | |
Lack of understanding | Fathers who lack understanding or knowledge about their child and/or about the condition of their child. | 1 (25.0) | 3 (75.0) | 4 (11.7) | |
Previous experiences | Fathers with previous negative experiences with HCPs and/or the healthcare system and who are “carrying the baggage” into a new conversation/interaction. | 0 (0) | 2 (100) | 2 (5.8) | |
Difficulty opening up | Fathers who have difficulty opening up about certain issues and/or share their feelings and concerns for fear of being perceived “weak.” | 0 (0) | 1 (100) | 1 (2.9) | |
Difficulty understanding HCPs | Fathers who have difficulty understanding HCPs for various reasons (e.g., communication barrier, low education level) | 0 (0) | 1 (100) | 1 (2.9) | |
Total | 4 (11.7) | 30 (88.2) | 34 (100) | ||
Cultural beliefs N = 18 20.7% |
Father's role | The cultural beliefs about father's role in the family and the healthcare of the child. | 2 (28.5) | 5 (71.4) | 7 (38.8) |
HCP who are female | Father's cultural beliefs toward HCPs who are female. | 0 (0) | 4 (100) | 4 (22.2) | |
Culture-general | Ethnicity or general cultural factors that can affect interactions. | 0 (0) | 3 (100) | 3 (16.6) | |
Disability | Fathers' cultural beliefs about their child's disability. | 0 (0) | 2 (100) | 2 (11.1) | |
HCP discipline | Fathers' cultural beliefs about HCP discipline (e.g., physicians vs. therapists). | 0 (0) | 1 (100) | 1 (5.5) | |
HCP age/experience level | Fathers' cultural beliefs about HCP of young age and/or possible low level of experience in childhood disability. | 0 (0) | 1 (100) | 1 (5.5) | |
Total | 2 (11.1) | 16 (88.8) | 18 (100) | ||
Stereotypical thinking or assumptions N = 9 10.3% |
- | Refers to preconceived or stereotypical beliefs (e.g., “father is present at the medical visit because of lack of trust or unsatisfaction with services”). | 3 (33.3) | 6 (66.7) | 9 (100) |
Total | 3 (33.3) | 6 (66.7) | 9 (100) | ||
Family dynamics N = 8 9.1% |
- | Refers to various limiting family dynamics (e.g., overpowering partner). | 0 (0) | 8 (100) | 8 (100) |
Total | 0 (0) | 8 (100) | 8 (100) | ||
Factors related to the healthcare and child-care systems N = 7 8.0% |
Accessibility to information, services, or contacts | Challenges related to accessing information, services or contact within the electronic record system/scheduling system. | 3 (60.0) | 2 (40.0) | 5 (71.4) |
Delays in appointments - long waiting times | Long waiting lists for medical appointments. | 1 (100) | 0 (0) | 1 (14.2) | |
Maternity vs. paternity leaves | Refers to a longer vs. shorter maternity vs. paternity leave, possibly affecting father's involvement in child's healthcare, general care, knowledge about child and condition. | 0 (0) | 1 (100) | 1 (14.2) | |
Total | 4 (57.1) | 3 (42.8) | 7 (100) | ||
Factors related to HCPs N = 6 6.8% |
Focus on negative aspects | HCP focusing on negative aspects, disability. | 2 (100) | 0 (0) | 2 (33.3) |
Lack of attention to fathers | HCP not directing attention specifically to fathers in interactions. | 1 (50.0) | 1 (50.0) | 2 (33.3) | |
Lack of knowledge about cultural factors and how to bridge them | HCP who lacks awareness about certain cultural factors that can be at play and how to bridge them during interactions. | 0 (0) | 1 (100) | 1 (16.7) | |
Early career, confidence level | HCP who is early in their career and have a low confidence level when interacting with fathers. | 0 (0) | 1 (100) | 1 (16.7) | |
Total | 3 (50.0) | 3 (50.0) | 6(100) | ||
Time limitation N = 5 5.7% |
- | Refers to time limitations during interactions (e.g., feeling of being rushed through medical visit or limited appointment time because of ongoing case load of the HCP). | 3 (60.0) | 2 (40.0) | 5 (100) |
Total | 3 (60.0) | 2 (40.0) | 5 (100) | ||
Grand Total | 19 (21.8) | 68 (78.2) | 87 (100) |