Table 2.

Frequency of topics identified in interviews and blogs with parents and siblings.

Topics		Siblings		Parents
		Blogs	Interviews	Blogs	Interviews
		(n = 18)	(n = 26)	(n = 13)	(n = 12)
Siblings' development of:	a) knowledge and skills for healthcare management	7	8	4	5
	b) role and identity	12	16	4	6
Emotional outlet and support for siblings		7	12	–	3
Advocacy to raise awareness about disability and role of siblings		6	3	–	–
Doing the best as a family		–	2	5	6
Meaningful participation in the family and community		6	4	–	5

–Topic was not identified.

^*Multiple topics may be identified in each interview and blog.