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. 2022 Aug 9;8(3):e36879. doi: 10.2196/36879

Table 6.

Summary of postdeployment qualitative responses related to Behavioral and Environmental Sensing and Intervention for Cancer (BESI-C).

Question Pta CGb
What was your general or overall impression of having BESI-C in your home?
  • “Just need to work out watch problems.” [Pt 1]

  • “It was a painless event. Didn’t know it was there. Did like the way it followed up [about the pain] with the follow up-EMA.” [Pt 2]

  • “The technical aspect was frustrating and inconsistent. Hard rating the pain since I was trying to stay ahead of the pain.” [Pt 3]

  • “Didn’t bother us a bit.” [Pt 4]

  • “Positive. Did not pay any attention to the equipment at all...This will be a great asset to patient dealing with pain. It makes you more aware of how important it is to manage pain properly and on a timely basis...” [Pt 5]

  • “Just needs to work more consistently.” [CG 1]

  • “[Privacy concerns] got better over time... we adjusted.” [CG 2]

  • “An interesting study and easy to use”; “equipment was inconsistent” (caregiver notes that they did not wear the smart watch to sleep). [CG 3]

  • “Some days would work well, sometimes not. It’s not obvious when she’s in pain. When she was taking a pill I would guess she’d be in pain.” [CG 3]

  • “Battery life [was an issue].” [CG 4]

  • “Didn’t even know [environmental] sensors were here.” [CG 4]

  • “I think it can help a lot of people out there who cannot get to a doctor when they’re really hurting and sick. Think you have a great invention here!” [CG 5]

What did you like about having BESI-C in your home? What did you dislike about having BESI-C in your home?
  • “Made me pay attention to what I was feeling and if my caregiver felt it.” [Pt 3]

  • “Helped me communicate with [my partner] more; Felt like I was able to tell [my partner] I was in pain, not hiding it and not waiting to take pain medication.” [Pt 5]

  • “Disliked watch. I don’t like wearing jewelry. Don’t wear a watch in general.” [Pt 4]

  • “Lag time in watch turning on was frustrating. Watch went back to black screen before you could answer.” [Pt 5]

  • “It was easy, took little time out of the day.” [CG 3]

  • “If it can help someone, I’m glad to do it.” [CG 4]

  • “The watch didn’t bother me. [But] I had to remember to wear the watch. It wasn’t clear if I had to wear it if I wasn’t with [patient].” [CG 4]

What could be changed to make the BESI-C system better?
  • “Accuracy with watch date/time; end of day surveys.” [Pt 2]

  • “Work to improve watch lag time.” [Pt 5]

  • “Longer charge on watch.” [CG 2]

  • “Include nausea. [Pt] was having nausea and I was distressed but that wasn’t because she was in pain.” [CG 3]

  • “Clearer instructions when to wear watches. When we were apart, wasn’t sure how to answer the questions.” [CG 4]

Did having BESI-C in your home impact or change how you communicated or interacted with your partner about pain? If so, how?
  • “We discussed pain more.” [Pt 2]

  • “She asked more specific questions about my pain.” [Pt 4]

  • “The system helped me take my medication on a more consistent basis before the pain built up to an intolerable level...`Before the BESI-C system I wouldn’t always communicate my pain with my caregiver in trying to prevent him from worrying. The system made me aware by not communicating I was doing the [opposite].” [Pt 5]

  • “I was paying more attention to the small things—like does she go sit down and rest? Raised awareness on pain management and how she looks and acts.” [CG 3]

  • “This is a good way to communicate...It made her [patient] more aware to take the pain medication at the right time so the pain did not build up and get worse and she could tolerate it better.” [CG 5]

You had the BESI-C system in your home for (10-14) days. Would you be willing to have BESI-C in your home for longer? Why or why not?
  • Yes

    • “The feeling of being monitored may be of benefit to me or others.” [Pt 2]

    • “I want the equipment to be tweaked. I want to be able to explain things under unusual event. BESI-C makes sense to me, helps piece things together.” [Pt 3]

  • No

    • “It was enough time. Found [ground truth] log annoying. Should be less repetitious—just note what has changed or unusual. Not so many reminders on watch.” [Pt 5]

  • Yes

    • “Sure. It was easy, didn’t take much time. Interesting in the beginning. Wanted to help in research. I liked the ‘level of distress’ question.” [CG 3]

    • “If it’s helping us or others, then yes.” [CG 4]

  • No

    • “People were asking about what the sensors were for, asking us ‘is the government watching us?’” [CG 2]


aPt: patient.

bCG: caregiver.