| What was your general or overall impression of having BESI-C in your home? |
“Just need to work out watch problems.” [Pt 1]
“It was a painless event. Didn’t know it was there. Did like the way it followed up [about the pain] with the follow up-EMA.” [Pt 2]
“The technical aspect was frustrating and inconsistent. Hard rating the pain since I was trying to stay ahead of the pain.” [Pt 3]
“Didn’t bother us a bit.” [Pt 4]
“Positive. Did not pay any attention to the equipment at all...This will be a great asset to patient dealing with pain. It makes you more aware of how important it is to manage pain properly and on a timely basis...” [Pt 5]
|
“Just needs to work more consistently.” [CG 1]
“[Privacy concerns] got better over time... we adjusted.” [CG 2]
“An interesting study and easy to use”; “equipment was inconsistent” (caregiver notes that they did not wear the smart watch to sleep). [CG 3]
“Some days would work well, sometimes not. It’s not obvious when she’s in pain. When she was taking a pill I would guess she’d be in pain.” [CG 3]
“Battery life [was an issue].” [CG 4]
“Didn’t even know [environmental] sensors were here.” [CG 4]
“I think it can help a lot of people out there who cannot get to a doctor when they’re really hurting and sick. Think you have a great invention here!” [CG 5]
|
| What did you like about having BESI-C in your home? What did you dislike about having BESI-C in your home? |
“Made me pay attention to what I was feeling and if my caregiver felt it.” [Pt 3]
“Helped me communicate with [my partner] more; Felt like I was able to tell [my partner] I was in pain, not hiding it and not waiting to take pain medication.” [Pt 5]
“Disliked watch. I don’t like wearing jewelry. Don’t wear a watch in general.” [Pt 4]
|
“It was easy, took little time out of the day.” [CG 3]
“If it can help someone, I’m glad to do it.” [CG 4]
“The watch didn’t bother me. [But] I had to remember to wear the watch. It wasn’t clear if I had to wear it if I wasn’t with [patient].” [CG 4]
|
| What could be changed to make the BESI-C system better? |
|
|
| Did having BESI-C in your home impact or change how you communicated or interacted with your partner about pain? If so, how? |
“We discussed pain more.” [Pt 2]
“She asked more specific questions about my pain.” [Pt 4]
“The system helped me take my medication on a more consistent basis before the pain built up to an intolerable level...`Before the BESI-C system I wouldn’t always communicate my pain with my caregiver in trying to prevent him from worrying. The system made me aware by not communicating I was doing the [opposite].” [Pt 5]
|
“I was paying more attention to the small things—like does she go sit down and rest? Raised awareness on pain management and how she looks and acts.” [CG 3]
“This is a good way to communicate...It made her [patient] more aware to take the pain medication at the right time so the pain did not build up and get worse and she could tolerate it better.” [CG 5]
|
| You had the BESI-C system in your home for (10-14) days. Would you be willing to have BESI-C in your home for longer? Why or why not? |
-
Yes
“The feeling of being monitored may be of benefit to me or others.” [Pt 2]
“I want the equipment to be tweaked. I want to be able to explain things under unusual event. BESI-C makes sense to me, helps piece things together.” [Pt 3]
-
No
|
-
Yes
“Sure. It was easy, didn’t take much time. Interesting in the beginning. Wanted to help in research. I liked the ‘level of distress’ question.” [CG 3]
“If it’s helping us or others, then yes.” [CG 4]
-
No
|