Hardware and software |
• Interoperability between systems is possible and essential for widespread implementation |
• Paradigm shift toward shared information across the charts of family members |
Clinical content |
• Standardized data formats for clinical information required (e.g., genetic test results) |
Human computer interface |
• Third party apps where patients control flow of their information are possible alternatives to sharing within an EHR system |
People |
• Patient preferences for sharing genetic information with family members not well understood |
Workflow and communication |
• Paradigm shift away from physicians as gatekeepers of patient data |
• Large changes to workflow may be barriers to physicians already busy with competing demands |
Internal organization features (e.g., policies, procedures, and culture) |
• Competing demands for systems with high IT resource needs |
• Perceived evolution away from family-based genetic testing to universal screening |
External rules and regulations |
• HIPAA compliance |
• Procedures for patient and relative to consent to chart linking unclear |
Measurement and monitoring |
• Alternatives may be more favorable than chart linkage tools (e.g., maintain status quo; patient-controlled third party apps; universal genetic testing rather than family linkage with cascade testing) |