Table 5.
Distribution of adolescent responses to CACHE questionnaire.
| Questions | Totally Agree | Agree | Occasionally |
Neither Agree nor
Disagree |
Disagree |
|---|---|---|---|---|---|
| My doctor spends an appropriate amount of time listening to and answering my questions about my bowel disease | 84 (69%) | 29 (24%) | 8 (6%) | 1 (1%) | 0 (0%) |
| I have confidence in my doctor’s judgment when managing and treating my bowel disease | 93 (76%) | 18 (15%) | 10 (8%) | 1 (1%) | 0 (0%) |
| understand the explanations given to me on my bowel disease, its treatment, and the side effects of treatment | 62 (51%) | 49 (40%) | 10 (8%) | 0 (0%) | 1 (1%) |
| I get advice and guidance about nutrition, daily activities, exercise, etc, which I have to follow because of my bowel disease | 55 (45%) | 36 (30%) | 21 (17%) | 10 (8%) | 0 (0%) |
| My doctor takes my opinion and preferences regarding treatment for my bowel disease into account | 64 (52%) | 44 (36%) | 11 (9%) | 2 (2%) | 1 (1%) |
| The medical personnel who look after me know my medical history and concern themselves with the evolution of my bowel disease | 65 (53%) | 40 (33%) | 13 (11%) | 3 (2%) | 1 (1%) |
| The center I go to have my condition treated is well-located and easily accessible | 52 (43%) | 40 (33%) | 18 (15%) | 9 (7%) | 3 (2%) |
| The facilities at the hospital I go to treat my bowel disease are adequate and comfortable | 57 (46%) | 43 (35%) | 18 (15%) | 2 (2%) | 2 (2%) |
| Communication with the medical staff treating me is appropriate and fluid | 57 (46%) | 43 (35%) | 18 (15%) | 2 (2%) | 2 (2%) |
| I feel listened to and understood by the medical staff treating me when I explain my intestinal problems and the difficulties they cause me | 66 (54%) | 42 (34%) | 13 (11%) | 0 (0%) | 1 (1%) |
| I worry about the price I have to pay for the drugs prescribed for my bowel disease | 9 (7%) | 15 (12%) | 22 (18%) | 36 (30%) | 40 (33%) |
| For me, it is important that I always see the same medical team | 31 (26%) | 42 (34%) | 37 (30%) | 10 (8%) | 2 (2%) |
| The staff take into account the consequences of my bowel disease treatment on my daily life | 61 (50%) | 48 (39%) | 12 (10%) | 1 (1%) | 0 (0%) |
| I have been informed about how to contact with patients’ associations for people with intestinal problems like mine | 20 (16%) | 33 (27%) | 24 (20%) | 24 (20%) | 21 (17%) |
| Having a specialist nurse in the medical team treating me would help me with my bowel disease | 28 (23%) | 35 (29%) | 38 (31%) | 12 (10%) | 9 (7%) |
| The staff that look after me and the place I go for treatment motivate me to stick with the treatment for my illness | 62 (51%) | 41 (33%) | 12 (10%) | 5 (4%) | 2 (2%) |
| The center where they administer my medication has the necessary resources and facilities | 73 (60%) | 37 (30%) | 9 (7%) | 2 (2%) | 1 (1%) |
| At the hospital where I get treatment for my bowel disease, I can get information about my disease through brochures, information campaigns, etc | 24 (20%) | 36 (30%) | 37 (30%) | 14 (11%) | 11 (9%) |
| I can see the clinician when I have a flare-up | 84 (69%) | 27 (22%) | 4 (3%) | 7 (6%) | 0 (0%) |
| Being able to talk with people who have the same or similar problems as me while I am receiving my medication, helps me to share questions and concerns related to my bowel disease | 21 (17%) | 27 (22%) | 32 (27%) | 28 (23%) | 13 (11%) |
| Visits can be scheduled on days and at times that least affect my daily activities (work, studies…) | 39 (32%) | 37 (30%) | 24 (20%) | 15 (12%) | 7 (6%) |
| In the hospital, they treat me with sufficient intimacy and reserve | 76 (63%) | 36 (29%) | 5 (4%) | 3 (2%) | 2 (2%) |
| The time I have to wait before being seen at the visit is reasonable | 43 (35%) | 46 (38%) | 23 (19%) | 7 (6%) | 3 (2%) |
| In the center I go to for treatment, I can be attended over the phone | 68 (56%) | 34 (28%) | 17 (14%) | 3 (2%) | 0 (0%) |
| The bathrooms in the center are adequate and accessible | 36 (30%) | 44 (36%) | 27 (22%) | 9 (7%) | 6 (5%) |
| There is good coordination and communication between my medical team and other specialists and/or primary care | 46 (38%) | 38 (31%) | 23 (19%) | 12 (10%) | 3 (2%) |
| I’m satisfied with the results of the treatment I receive | 58 (48%) | 38 (31%) | 22 (18%) | 4 (3%) | 0 (0%) |
| If any problems arise with the treatment I am receiving, my medical team resolve it quickly and effectively | 63 (52%) | 47 (39%) | 8 (6%) | 4 (3%) | 0 (0%) |
| I feel safer if I get the treatment at the hospital than if I had to do it at home | 38 (31%) | 25 (20%) | 32 (27%) | 17 (14%) | 10 (8%) |
| I understand the instructions I’ve been given about my medication | 73 (60%) | 34 (27%) | 12 (10%) | 1 (1%) | 2 (2%) |
| I’ve been given adequate information about the side effects of my medication | 61 (50%) | 38 (31%) | 17 (14%) | 4 (3%) | 2 (2%) |