Table 6.
Distribution of adult responses in CACHE questionnaire.
| Questions | Totally Agree | Agree | Occasionally |
Neither Agree nor
Disagree |
Disagree |
|---|---|---|---|---|---|
| My doctor spends an appropriate amount of time listening to and answering my questions about my bowel disease | 89 (54%) | 36 (22%) | 31 (19%) | 7 (4%) | 1 (1%) |
| I have confidence in my doctor’s judgment when managing and treating my bowel disease | 104 (63%) | 34 (21%) | 24 (15%) | 1 (1%) | 1 (1%) |
| understand the explanations given to me on my bowel disease, its treatment, and the side effects of treatment | 79 (48%) | 63 (39%) | 20 (12%) | 2 (1%) | 0 (0%) |
| I get advice and guidance about nutrition, daily activities, exercise, etc, which I have to follow because of my bowel disease | 58 (35%) | 41 (25%) | 44 (27%) | 13 (8%) | 8 (5%) |
| My doctor takes my opinion and preferences regarding treatment for my bowel disease into account | 77 (47%) | 51 (31%) | 28 (17%) | 7 (4%) | 1 (1%) |
| The medical personnel who look after me know my medical history and concern themselves with the evolution of my bowel disease | 75 (46%) | 42 (25%) | 28 (17%) | 13 (8%) | 6 (4%) |
| The center I go to have my condition treated is well-located and easily accessible | 87 (53%) | 51 (31%) | 22 (14%) | 2 (1%) | 2 (1%) |
| The facilities at the hospital I go to treat my bowel disease are adequate and comfortable | 76 (46%) | 53 (32%) | 26 (16%) | 6 (4%) | 3 (2%) |
| Communication with the medical staff treating me is appropriate and fluid | 80 (49%) | 39 (24%) | 32 (19%) | 9 (6%) | 4 (2%) |
| I feel listened to and understood by the medical staff treating me when I explain my intestinal problems and the difficulties they cause me | 74 (45%) | 60 (37%) | 20 (12%) | 8 (5%) | 2 (1%) |
| I worry about the price I have to pay for the drugs prescribed for my bowel disease | 17 (11%) | 18 (11%) | 48 (29%) | 46 (28%) | 35 (21%) |
| For me, it is important that I always see the same medical team | 70 (42%) | 64 (39%) | 23 (14%) | 6 (4%) | 1 (1%) |
| The staff take into account the consequences of my bowel disease treatment on my daily life | 63 (39%) | 67 (40%) | 23 (14%) | 10 (6%) | 1 (1%) |
| I have been informed about how to contact with patients’ associations for people with intestinal problems like mine | 32 (19%) | 46 (28%) | 25 (16%) | 29 (18%) | 32 (19%) |
| Having a specialist nurse in the medical team treating me would help me with my bowel disease | 32 (19%) | 67 (40%) | 37 (24%) | 20 (12%) | 8 (5%) |
| The staff that look after me and the place I go for treatment motivate me to stick with the treatment for my illness | 72 (44%) | 64 (39%) | 20 (12%) | 6 (4%) | 2 (1%) |
| The center where they administer my medication has the necessary resources and facilities | 86 (52%) | 48 (29%) | 24 (15%) | 5 (3%) | 1 (1%) |
| At the hospital where I get treatment for my bowel disease, I can get information about my disease through brochures, information campaigns, etc | 47 (28%) | 41 (25%) | 34 (21%) | 26 (16%) | 16 (10%) |
| I can see the clinician when I have a flare-up | 73 (45%) | 53 (32%) | 24 (15%) | 10 (6%) | 4 (2%) |
| Being able to talk with people who have the same or similar problems as me while I am receiving my medication, helps me to share questions and concerns related to my bowel disease | 31 (19%) | 40 (24%) | 40 (24%) | 32 (19%) | 21 (14%) |
| Visits can be scheduled on days and at times that least affect my daily activities (work, studies…) | 53 (32%) | 42 (25%) | 30 (18%) | 25 (16%) | 14 (9%) |
| In the hospital, they treat me with sufficient intimacy and reserve | 73 (45%) | 59 (36%) | 20 (12%) | 8 (5%) | 4 (2%) |
| The time I have to wait before being seen at the visit is reasonable | 40 (25%) | 59 (36%) | 41 (25%) | 20 (12%) | 4 (2%) |
| In the center I go to for treatment, I can be attended over the phone | 63 (39%) | 51 (31%) | 28 (17%) | 15 (9%) | 7 (4%) |
| The bathrooms in the center are adequate and accessible | 42 (25%) | 51 (31%) | 42 (25%) | 13 (8%) | 16 (11%) |
| There is good coordination and communication between my medical team and other specialists and/or primary care | 36 (22%) | 40 (24%) | 39 (24%) | 29 (18%) | 20 (12%) |
| I’m satisfied with the results of the treatment I receive | 60 (37%) | 54 (33%) | 38 (23%) | 8 (5%) | 4 (2%) |
| If any problems arise with the treatment I am receiving, my medical team resolve it quickly and effectively | 65 (40%) | 55 (33%) | 31 (19%) | 9 (6%) | 4 (2%) |
| I feel safer if I get the treatment at the hospital than if I had to do it at home | 41 (25%) | 48 (29%) | 48 (29%) | 20 (12%) | 7 (5%) |
| I understand the instructions I’ve been given about my medication | 99 (60%) | 56 (34%) | 8 (5%) | 1 (1%) | 0 (0%) |
| I’ve been given adequate information about the side effects of my medication | 57 (35%) | 48 (29%) | 35 (21%) | 13 (8%) | 11 (7%) |