Table 5.
Summary of identified needs
Author/Year | Identified needs |
---|---|
Afram et al. (2015) | Knowledge and information about diseases and care options |
Support from social environments e.g., relatives, peers | |
Involvement in care planning | |
Appropriate and adequate formal care | |
Family involvement in care | |
Funding for private care | |
Training in communication skills | |
To become more prepared for transitioning to long term care | |
Johl et al. (2016) | Knowledge of support system available in ancestral country of origin |
Tailored mental health services that address cultural differences and language barriers | |
Education for families on the nature of dementia | |
Khannasov et al. (2016) | Earlier diagnosis |
Education/ counseling on disease | |
In-home support (for physical care or chores) | |
Information on relevant services | |
Help with legal issues | |
Advising on advance directives | |
Financial support and planning | |
Access to family physician and other health professionals trained in geriatrics | |
Care coordination and continuity of care | |
Emotional support | |
Social support | |
Training in communication skills and strategies for handling maladaptive behaviour | |
Included in care planning | |
McCabe et al. (2016) | Information and knowledge |
Support in managing care recipients’ activities of daily living (ADL), instrumental activities of daily living | |
(IADL), as well as Behavioral and Psychological Symptoms of | |
Dementia (BPSD) | |
Appropriate formal care | |
Informal social support | |
To have personal challenges (health and general life issues) addressed | |
Millenaar et al. (2016) | Timely diagnosis |
Information to better understand disease and type of help available | |
Waligora et al. (2018) | Sleep |
Social support and engagement | |
Participation in leisure activities |