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. 2022 Jan 13;19(3):381–396. doi: 10.1007/s10433-021-00680-0

Table 5.

Summary of identified needs

Author/Year Identified needs
Afram et al. (2015) Knowledge and information about diseases and care options
Support from social environments e.g., relatives, peers
Involvement in care planning
Appropriate and adequate formal care
Family involvement in care
Funding for private care
Training in communication skills
To become more prepared for transitioning to long term care
Johl et al. (2016) Knowledge of support system available in ancestral country of origin
Tailored mental health services that address cultural differences and language barriers
Education for families on the nature of dementia
Khannasov et al. (2016) Earlier diagnosis
Education/ counseling on disease
In-home support (for physical care or chores)
Information on relevant services
Help with legal issues
Advising on advance directives
Financial support and planning
Access to family physician and other health professionals trained in geriatrics
Care coordination and continuity of care
Emotional support
Social support
Training in communication skills and strategies for handling maladaptive behaviour
Included in care planning
McCabe et al. (2016) Information and knowledge
Support in managing care recipients’ activities of daily living (ADL), instrumental activities of daily living
(IADL), as well as Behavioral and Psychological Symptoms of
Dementia (BPSD)
Appropriate formal care
Informal social support
To have personal challenges (health and general life issues) addressed
Millenaar et al. (2016) Timely diagnosis
Information to better understand disease and type of help available
Waligora et al. (2018) Sleep
Social support and engagement
Participation in leisure activities