Skip to main content
. 2022 Feb 12;16(8):1306–1320. doi: 10.1093/ecco-jcc/jjac027

Table 3.

Recommendations for the harmonious generation of omic datasets towards the goals of advancing mechanistic knowledge and clinical translation in IBD research.

Policy domain Stakeholders Recommendations
Funding and resource allocation • Funding agencies
• IBD consortia
• Principal investigators
• Prolonged funding for generating omic datasets from IBD patients in a longitudinal manner
• Targeted financial support for promoting international collaboration with research stakeholders in developing countries
• ‘Follow-up’ grants to generate missing particular omic datasets to complement pre-existing omic datasets from the same samples
• Ring-fencing funding for training skilled omic scientists
Collaboration and harmonisation • Funding agencies
• Principal investigators
• Non-profit medical organisations in the realm of IBD
• IBD consortia
• Principal investigators
• Compilation of commonly agreed standards for IBD omic datasets
• Coordinated strategies between international and national funders to avoid huge redundancies in terms of omic datasets
• Creation of an easily shareable IBD omic dataset catalog between multiple funders and agencies in the IBD domain
• Encouraging exchange programmes for interdisciplinary research
Legal and organisational • Universities
• Principal investigators
• Industry
• Creating robust and flexible inter-institutional confidentiality agreements to promote exchange of knowledge and information while fulfilling GDPR requirements
• Intra- and inter-project alignment for achieving multiple objectives using the same omic datasets

GDPR, general data protection regulation; IBD, inflammatory bowel disease.