Table II.
Rating of the outcomes in the final core outcome set, by stakeholder group.
| Outcome | Rating | Stakeholder group |
|||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|
| Patient n % | Partner n % | HCP n % | Researcher n % | Total n % | |||||||
| Cyclic pelvic pain | I don’t know OC | 3 | 0.9% | 0 | 0.0% | 0 | 0.0% | 1 | 5.9% | 4 | 0.8% |
| Exclude | 8 | 2.4% | 0 | 0.0% | 6 | 4.0% | 1 | 5.9% | 15 | 3.0% | |
| Undecided | 9 | 2.8% | 1 | 14.3% | 6 | 4.0% | 0 | 0.0% | 16 | 3.2% | |
| Include | 307 | 93.9% | 6 | 85.7% | 138 | 92.0% | 15 | 88.2% | 466 | 93.0% | |
| Dyschezia | I don’t know OC | 19 | 5.8% | 2 | 28.6% | 1 | 0.7% | 1 | 5.9% | 23 | 4.6% |
| Exclude | 10 | 3.1% | 0 | 0.0% | 10 | 6.7% | 2 | 11.8% | 22 | 4.4% | |
| Undecided | 49 | 15.0% | 2 | 28.6% | 36 | 24.0% | 3 | 17.6% | 90 | 18.0% | |
| Include | 249 | 76.1% | 3 | 42.9% | 103 | 68.7% | 11 | 64.7% | 366 | 73.1% | |
| Dysmenorrhea | I don’t know OC | 5 | 1.5% | 1 | 14.3% | 1 | 0.7% | 1 | 5.9% | 8 | 1.6% |
| Exclude | 9 | 2.8% | 0 | 0.0% | 4 | 2.7% | 0 | 0.0% | 13 | 2.6% | |
| Undecided | 11 | 3.4% | 1 | 14.3% | 1 | 0.7% | 1 | 5.9% | 14 | 2.8% | |
| Include | 302 | 92.4% | 5 | 71.4% | 144 | 96.0% | 15 | 88.2% | 466 | 93.0% | |
| Dyspareunia | I don’t know OC | 14 | 4.3% | 1 | 14.3% | 1 | 0.7% | 1 | 5.9% | 17 | 3.4% |
| Exclude | 14 | 4.3% | 0 | 0.0% | 5 | 3.3% | 0 | 0.0% | 19 | 3.8% | |
| Undecided | 24 | 7.3% | 0 | 0.0% | 21 | 14.0% | 2 | 11.8% | 47 | 9.4% | |
| Include | 275 | 84.1% | 6 | 85.7% | 123 | 82.0% | 14 | 82.4% | 418 | 83.4% | |
| Non-cyclic. untriggered pelvic pain | I don’t know OC | 6 | 1.8% | 1 | 14.3% | 1 | 0.7% | 0 | 0.0% | 8 | 1.6% |
| Exclude | 13 | 4.0% | 0 | 0.0% | 9 | 6.0% | 1 | 5.9% | 23 | 4.6% | |
| Undecided | 33 | 10.1% | 1 | 14.3% | 29 | 19.3% | 5 | 29.4% | 68 | 13.6% | |
| Include | 275 | 84.1% | 5 | 71.4% | 111 | 74.0% | 11 | 64.7% | 402 | 80.2% | |
| I don’t know OC | 0 | 0.0% | 1 | 50.0% | 0 | 0.0% | 0 | 0.0% | 1 | 0.3% | |
| Pelvic bulk/pressure symptoms | Exclude | 6 | 3.3% | 0 | 0.0% | 3 | 3.2% | 1 | 6.7% | 10 | 3.4% |
| Undecided | 14 | 7.7% | 0 | 0.0% | 18 | 19.4% | 3 | 20.0% | 35 | 12.0% | |
| Include | 161 | 89.0% | 1 | 50.0% | 72 | 77.4% | 11 | 73.3% | 245 | 84.2% | |
| Radiating pain to lower back and/or extremities during menstruation | I don’t know OC | 3 | 1.7% | 0 | 0.0% | 0 | 0.0% | 0 | 0.0% | 3 | 1.0% |
| Exclude | 10 | 5.5% | 0 | 0.0% | 9 | 9.7% | 0 | 0.0% | 19 | 6.5% | |
| Undecided | 26 | 14.4% | 0 | 0.0% | 40 | 43.0% | 8 | 53.3% | 74 | 25.4% | |
| Include | 142 | 78.5% | 2 | 100.0% | 44 | 47.3% | 7 | 46.7% | 195 | 67.0% | |
| Urinary frequency | I don’t know OC | 18 | 5.5% | 3 | 42.9% | 1 | 0.7% | 1 | 5.9% | 23 | 4.6% |
| Exclude | 13 | 4.0% | 0 | 0.0% | 18 | 12.0% | 2 | 11.8% | 33 | 6.6% | |
| Undecided | 61 | 18.7% | 2 | 28.6% | 59 | 39.3% | 5 | 29.4% | 127 | 25.3% | |
| Include | 235 | 71.9% | 2 | 28.6% | 72 | 48.0% | 9 | 52.9% | 318 | 63.5% | |
| Blood flow volume | I don’t know OC | 8 | 2.4% | 1 | 14.3% | 0 | 0.0% | 1 | 5.9% | 10 | 2.0% |
| Exclude | 8 | 2.4% | 0 | 0.0% | 6 | 4.0% | 0 | 0.0% | 14 | 2.8% | |
| Undecided | 24 | 7.3% | 0 | 0.0% | 4 | 2.7% | 1 | 5.9% | 29 | 5.8% | |
| Include | 287 | 87.8% | 6 | 85.7% | 140 | 93.3% | 15 | 88.2% | 448 | 89.4% | |
| Duration of bleeding | I don’t know OC | 9 | 2.8% | 1 | 14.3% | 0 | 0.0% | 1 | 5.9% | 11 | 2.2% |
| Exclude | 10 | 3.1% | 0 | 0.0% | 8 | 5.3% | 0 | 0.0% | 18 | 3.6% | |
| Undecided | 41 | 12.5% | 0 | 0.0% | 13 | 8.7% | 2 | 11.8% | 56 | 11.2% | |
| Include | 267 | 81.7% | 6 | 85.7% | 129 | 86.0% | 14 | 82.4% | 416 | 83.0% | |
| Intermenstrual bleeding | I don’t know OC | 23 | 7.0% | 1 | 14.3% | 0 | 0.0% | 2 | 11.8% | 26 | 5.2% |
| Exclude | 20 | 6.1% | 0 | 0.0% | 15 | 10.0% | 0 | 0.0% | 35 | 7.0% | |
| Undecided | 71 | 21.7% | 1 | 14.3% | 30 | 20.0% | 7 | 41.2% | 109 | 21.8% | |
| Include | 213 | 65.1% | 5 | 71.4% | 105 | 70.0% | 8 | 47.1% | 331 | 66.1% | |
| I don’t know OC | 8 | 4.4% | 0 | 0.0% | 0 | 0.0% | 0 | 0.0% | 8 | 2.7% | |
| Frequency of menstruation | Exclude | 7 | 3.9% | 0 | 0.0% | 11 | 11.8% | 3 | 20.0% | 21 | 7.2% |
| Undecided | 46 | 25.4% | 0 | 0.0% | 16 | 17.2% | 5 | 33.3% | 67 | 23.0% | |
| Include | 120 | 66.3% | 2 | 100.0% | 66 | 71.0% | 7 | 46.7% | 195 | 67.0% | |
| I don’t know OC | 8 | 4.4% | 0 | 0.0% | 0 | 0.0% | 0 | 0.0% | 8 | 2.7% | |
| Regularity of cycle | Exclude | 12 | 6.6% | 0 | 0.0% | 11 | 11.8% | 4 | 26.7% | 27 | 9.3% |
| Undecided | 47 | 26.0% | 0 | 0.0% | 17 | 18.3% | 3 | 20.0% | 67 | 23.0% | |
| Include | 114 | 63.0% | 2 | 100.0% | 65 | 69.9% | 8 | 53.3% | 189 | 64.9% | |
| Fertility Core Outcome Set | I don’t know OC | 66 | 20.2% | 1 | 14.3% | 1 | 0.7% | 0 | 0.0% | 68 | 13.6% |
| Exclude | 13 | 4.0% | 1 | 14.3% | 4 | 2.7% | 0 | 0.0% | 18 | 3.6% | |
| Undecided | 22 | 6.7% | 0 | 0.0% | 5 | 3.3% | 0 | 0.0% | 27 | 5.4% | |
| Include | 226 | 69.1% | 5 | 71.4% | 140 | 93.3% | 17 | 100.0% | 388 | 77.4% | |
| Mode of Conception | I don’t know OC | 70 | 21.4% | 2 | 28.6% | 2 | 1.3% | 0 | 0.0% | 74 | 14.8% |
| Exclude | 11 | 3.4% | 0 | 0.0% | 2 | 1.3% | 1 | 5.9% | 14 | 2.8% | |
| Undecided | 34 | 10.4% | 0 | 0.0% | 20 | 13.3% | 5 | 29.4% | 59 | 11.8% | |
| Include | 212 | 64.8% | 5 | 71.4% | 126 | 84.0% | 11 | 64.7% | 354 | 70.7% | |
| Postpartum Haemorrhage | I don’t know OC | 90 | 27.5% | 2 | 28.6% | 1 | 0.7% | 0 | 0.0% | 93 | 18.6% |
| Exclude | 9 | 2.8% | 0 | 0.0% | 7 | 4.7% | 0 | 0.0% | 16 | 3.2% | |
| Undecided | 45 | 13.8% | 1 | 14.3% | 27 | 18.0% | 5 | 29.4% | 78 | 15.6% | |
| Include | 183 | 56.0% | 4 | 57.1% | 115 | 76.7% | 12 | 70.6% | 314 | 62.7% | |
| I don’t know OC | 34 | 18.8% | 0 | 0.0% | 0 | 0.0% | 0 | 0.0% | 34 | 11.7% | |
| Abnormal placentation | Exclude | 4 | 2.2% | 0 | 0.0% | 3 | 3.2% | 0 | 0.0% | 7 | 2.4% |
| Undecided | 26 | 14.4% | 1 | 50.0% | 6 | 6.5% | 5 | 33.3% | 38 | 13.1% | |
| Include | 117 | 64.6% | 1 | 50.0% | 84 | 90.3% | 10 | 66.7% | 212 | 72.9% | |
| Health-Related Quality of Life | I don’t know OC | 0 | 0.0% | 0 | 0.0% | 0 | 0.0% | 0 | 0.0% | 0 | 0.0% |
| Exclude | 3 | 0.9% | 0 | 0.0% | 2 | 1.3% | 0 | 0.0% | 5 | 1.0% | |
| Undecided | 5 | 1.5% | 0 | 0.0% | 6 | 4.0% | 0 | 0.0% | 11 | 2.2% | |
| Include | 319 | 97.6% | 7 | 100.0% | 142 | 94.7% | 17 | 100.0% | 485 | 96.8% | |
| Sexual Function | I don’t know OC | 7 | 2.1% | 1 | 14.3% | 0 | 0.0% | 0 | 0.0% | 8 | 1.6% |
| Exclude | 5 | 1.5% | 0 | 0.0% | 3 | 2.0% | 0 | 0.0% | 8 | 1.6% | |
| Undecided | 18 | 5.5% | 0 | 0.0% | 9 | 6.0% | 2 | 11.8% | 29 | 5.8% | |
| Include | 297 | 90.8% | 6 | 85.7% | 138 | 92.0% | 15 | 88.2% | 456 | 91.0% | |
| I don’t know OC | 12 | 6.6% | 0 | 0.0% | 0 | 0.0% | 0 | 0.0% | 12 | 4.1% | |
| Bleeding during or after sexual activity | Exclude | 5 | 2.8% | 0 | 0.0% | 11 | 11.8% | 1 | 6.7% | 17 | 5.8% |
| Undecided | 29 | 16.0% | 0 | 0.0% | 27 | 29.0% | 8 | 53.3% | 64 | 22.0% | |
| Include | 135 | 74.6% | 2 | 100.0% | 55 | 59.1% | 6 | 40.0% | 198 | 68.0% | |
| Patient adherence to treatment | I don’t know OC | 12 | 3.7% | 0 | 0.0% | 2 | 1.3% | 0 | 0.0% | 14 | 2.8% |
| Exclude | 5 | 1.5% | 0 | 0.0% | 3 | 2.0% | 0 | 0.0% | 8 | 1.6% | |
| Undecided | 36 | 11.0% | 0 | 0.0% | 6 | 4.0% | 4 | 23.5% | 46 | 9.2% | |
| Include | 274 | 83.8% | 7 | 100.0% | 139 | 92.7% | 13 | 76.5% | 433 | 86.4% | |
| Patient satisfaction with treatment | I don’t know OC | 7 | 2.1% | 1 | 14.3% | 0 | 0.0% | 1 | 5.9% | 9 | 1.8% |
| Exclude | 7 | 2.1% | 0 | 0.0% | 3 | 2.0% | 0 | 0.0% | 10 | 2.0% | |
| Undecided | 24 | 7.3% | 0 | 0.0% | 2 | 1.3% | 0 | 0.0% | 26 | 5.2% | |
| Include | 289 | 88.4% | 6 | 85.7% | 145 | 96.7% | 16 | 94.1% | 456 | 91.0% | |
| Symptom relief rate for most bothersome symptom | I don’t know OC | 14 | 4.3% | 1 | 14.3% | 0 | 0.0% | 0 | 0.0% | 15 | 3.0% |
| Exclude | 3 | 0.9% | 0 | 0.0% | 3 | 2.0% | 0 | 0.0% | 6 | 1.2% | |
| Undecided | 16 | 4.9% | 0 | 0.0% | 5 | 3.3% | 2 | 11.8% | 23 | 4.6% | |
| Include | 294 | 89.9% | 6 | 85.7% | 142 | 94.7% | 15 | 88.2% | 457 | 91.2% | |
| Symptom recurrence for any symptom | I don’t know OC | 15 | 4.6% | 1 | 14.3% | 1 | 0.7% | 0 | 0.0% | 17 | 3.4% |
| Exclude | 6 | 1.8% | 0 | 0.0% | 2 | 1.3% | 0 | 0.0% | 8 | 1.6% | |
| Undecided | 16 | 4.9% | 0 | 0.0% | 5 | 3.3% | 3 | 17.6% | 24 | 4.8% | |
| Include | 290 | 88.7% | 6 | 85.7% | 142 | 94.7% | 14 | 82.4% | 452 | 90.2% | |
| Symptom recurrence for most bothersome symptom | I don’t know OC | 16 | 4.9% | 1 | 14.3% | 0 | 0.0% | 0 | 0.0% | 17 | 3.4% |
| Exclude | 5 | 1.5% | 0 | 0.0% | 5 | 3.3% | 0 | 0.0% | 10 | 2.0% | |
| Undecided | 16 | 4.9% | 0 | 0.0% | 13 | 8.7% | 4 | 23.5% | 33 | 6.6% | |
| Include | 290 | 88.7% | 6 | 85.7% | 132 | 88.0% | 13 | 76.5% | 441 | 88.0% | |
| Lesion size | I don’t know OC | 29 | 8.9% | 2 | 28.6% | 2 | 1.3% | 0 | 0.0% | 33 | 6.6% |
| Exclude | 2 | 0.6% | 0 | 0.0% | 3 | 2.0% | 0 | 0.0% | 5 | 1.0% | |
| Undecided | 39 | 11.9% | 0 | 0.0% | 18 | 12.0% | 4 | 23.5% | 61 | 12.2% | |
| Include | 257 | 78.6% | 5 | 71.4% | 127 | 84.7% | 13 | 76.5% | 402 | 80.2% | |
| Uterus volume | I don’t know OC | 36 | 11.0% | 2 | 28.6% | 2 | 1.3% | 1 | 5.9% | 41 | 8.2% |
| Exclude | 1 | 0.3% | 0 | 0.0% | 2 | 1.3% | 0 | 0.0% | 3 | 0.6% | |
| Undecided | 68 | 20.8% | 1 | 14.3% | 21 | 14.0% | 5 | 29.4% | 95 | 19.0% | |
| Include | 222 | 67.9% | 4 | 57.1% | 125 | 83.3% | 11 | 64.7% | 362 | 72.3% | |
| Discomfort during procedure | I don’t know OC | 12 | 3.7% | 1 | 14.3% | 1 | 0.7% | 1 | 5.9% | 15 | 3.0% |
| Exclude | 5 | 1.5% | 0 | 0.0% | 2 | 1.3% | 0 | 0.0% | 7 | 1.4% | |
| Undecided | 31 | 9.5% | 1 | 14.3% | 12 | 8.0% | 4 | 23.5% | 48 | 9.6% | |
| Include | 279 | 85.3% | 5 | 71.4% | 135 | 90.0% | 12 | 70.6% | 431 | 86.0% | |
| Recovery time | I don’t know OC | 20 | 6.1% | 1 | 14.3% | 0 | 0.0% | 0 | 0.0% | 21 | 4.2% |
| Exclude | 10 | 3.1% | 0 | 0.0% | 2 | 1.3% | 0 | 0.0% | 12 | 2.4% | |
| Undecided | 34 | 10.4% | 0 | 0.0% | 14 | 9.3% | 5 | 29.4% | 53 | 10.6% | |
| Include | 263 | 80.4% | 6 | 85.7% | 134 | 89.3% | 12 | 70.6% | 415 | 82.8% | |
| Need for repeated or other treatment (Need for re-intervention) | I don’t know OC | 33 | 10.1% | 1 | 14.3% | 3 | 2.0% | 0 | 0.0% | 37 | 7.4% |
| Exclude | 4 | 1.2% | 0 | 0.0% | 4 | 2.7% | 0 | 0.0% | 8 | 1.6% | |
| Undecided | 30 | 9.2% | 0 | 0.0% | 10 | 6.7% | 5 | 29.4% | 45 | 9.0% | |
| Include | 260 | 79.5% | 6 | 85.7% | 133 | 88.7% | 12 | 70.6% | 411 | 82.0% | |
| Length of hospital stay | I don’t know OC | 34 | 10.4% | 2 | 28.6% | 2 | 1.3% | 0 | 0.0% | 38 | 7.6% |
| Exclude | 16 | 4.9% | 0 | 0.0% | 6 | 4.0% | 2 | 11.8% | 24 | 4.8% | |
| Undecided | 69 | 21.1% | 0 | 0.0% | 28 | 18.7% | 4 | 23.5% | 101 | 20.2% | |
| Include | 208 | 63.6% | 5 | 71.4% | 114 | 76.0% | 11 | 64.7% | 338 | 67.5% | |
| Death | I don’t know OC | 70 | 21.4% | 2 | 28.6% | 7 | 4.7% | 2 | 11.8% | 81 | 16.2% |
| Exclude | 9 | 2.8% | 0 | 0.0% | 4 | 2.7% | 0 | 0.0% | 13 | 2.6% | |
| Undecided | 20 | 6.1% | 1 | 14.3% | 5 | 3.3% | 1 | 5.9% | 27 | 5.4% | |
| Include | 228 | 69.7% | 4 | 57.1% | 134 | 89.3% | 14 | 82.4% | 380 | 75.8% | |
| Harms | I don’t know OC | 41 | 12.5% | 2 | 28.6% | 4 | 2.7% | 2 | 11.8% | 49 | 9.8% |
| Exclude | 5 | 1.5% | 0 | 0.0% | 3 | 2.0% | 0 | 0.0% | 8 | 1.6% | |
| Undecided | 18 | 5.5% | 0 | 0.0% | 5 | 3.3% | 1 | 5.9% | 24 | 4.8% | |
| Include | 263 | 80.4% | 5 | 71.4% | 138 | 92.0% | 14 | 82.4% | 420 | 83.8% | |
| Infections | I don’t know OC | 39 | 11.9% | 1 | 14.3% | 4 | 2.7% | 1 | 5.9% | 45 | 9.0% |
| Exclude | 7 | 2.1% | 0 | 0.0% | 3 | 2.0% | 0 | 0.0% | 10 | 2.0% | |
| Undecided | 18 | 5.5% | 0 | 0.0% | 10 | 6.7% | 4 | 23.5% | 32 | 6.4% | |
| Include | 263 | 80.4% | 6 | 85.7% | 133 | 88.7% | 12 | 70.6% | 414 | 82.6% | |
| Unplanned bleeding on hormonal medication | I don’t know OC | 12 | 6.6% | 0 | 0.0% | 0 | 0.0% | 0 | 0.0% | 12 | 4.1% |
| Exclude | 11 | 6.1% | 0 | 0.0% | 2 | 2.2% | 1 | 6.7% | 14 | 4.8% | |
| Undecided | 28 | 15.5% | 0 | 0.0% | 16 | 17.2% | 4 | 26.7% | 48 | 16.5% | |
| Include | 130 | 71.8% | 2 | 100.0% | 75 | 80.6% | 10 | 66.7% | 217 | 74.6% | |
| Endometriosis present | I don’t know OC | 4 | 1.2% | 0 | 0.0% | 1 | 0.7% | 1 | 5.9% | 6 | 1.2% |
| Exclude | 5 | 1.5% | 0 | 0.0% | 3 | 2.0% | 0 | 0.0% | 8 | 1.6% | |
| Undecided | 16 | 4.9% | 1 | 14.3% | 3 | 2.0% | 1 | 5.9% | 21 | 4.2% | |
| Include | 302 | 92.4% | 6 | 85.7% | 143 | 95.3% | 15 | 88.2% | 466 | 93.0% | |
| Fibroids present | I don’t know OC | 36 | 11.0% | 3 | 42.9% | 2 | 1.3% | 1 | 5.9% | 42 | 8.4% |
| Exclude | 7 | 2.1% | 0 | 0.0% | 3 | 2.0% | 0 | 0.0% | 10 | 2.0% | |
| Undecided | 34 | 10.4% | 2 | 28.6% | 7 | 4.7% | 3 | 17.6% | 46 | 9.2% | |
| Include | 250 | 76.5% | 2 | 28.6% | 138 | 92.0% | 13 | 76.5% | 403 | 80.4% | |
| Chronic pelvic pain present | I don’t know OC | 0 | 0.0% | 0 | 0.0% | 0 | 0.0% | 0 | 0.0% | 0 | 0.0% |
| Exclude | 5 | 2.8% | 0 | 0.0% | 0 | 0.0% | 0 | 0.0% | 5 | 1.7% | |
| Undecided | 4 | 2.2% | 0 | 0.0% | 2 | 2.2% | 0 | 0.0% | 6 | 2.1% | |
| Include | 172 | 95.0% | 2 | 100.0% | 91 | 97.8% | 15 | 100.0% | 280 | 96.2% | |
| Wish for future pregnancy | I don’t know OC | 14 | 4.3% | 0 | 0.0% | 0 | 0.0% | 1 | 5.9% | 15 | 3.0% |
| Exclude | 10 | 3.1% | 1 | 14.3% | 4 | 2.7% | 0 | 0.0% | 15 | 3.0% | |
| Undecided | 35 | 10.7% | 0 | 0.0% | 6 | 4.0% | 2 | 11.8% | 43 | 8.6% | |
| Include | 268 | 82.0% | 6 | 85.7% | 140 | 93.3% | 14 | 82.4% | 428 | 85.4% | |
| Classification of adenomyosis | I don’t know OC | 50 | 15.3% | 2 | 28.6% | 5 | 3.3% | 1 | 5.9% | 58 | 11.6% |
| Exclude | 1 | 0.3% | 1 | 14.3% | 3 | 2.0% | 0 | 0.0% | 5 | 1.0% | |
| Undecided | 53 | 16.2% | 0 | 0.0% | 8 | 5.3% | 4 | 23.5% | 65 | 13.0% | |
| Include | 223 | 68.2% | 4 | 57.1% | 134 | 89.3% | 12 | 70.6% | 373 | 74.5% | |
| Previous treatment for adenomyosis | I don’t know OC | 12 | 3.7% | 1 | 14.3% | 0 | 0.0% | 1 | 5.9% | 14 | 2.8% |
| Exclude | 7 | 2.1% | 0 | 0.0% | 4 | 2.7% | 0 | 0.0% | 11 | 2.2% | |
| Undecided | 22 | 6.7% | 0 | 0.0% | 10 | 6.7% | 4 | 23.5% | 36 | 7.2% | |
| Include | 286 | 87.5% | 6 | 85.7% | 136 | 90.7% | 12 | 70.6% | 440 | 87.8% | |
| Cost treatment overall | I don’t know OC | 35 | 10.7% | 1 | 14.3% | 3 | 2.0% | 0 | 0.0% | 39 | 7.8% |
| Exclude | 18 | 5.5% | 0 | 0.0% | 6 | 4.0% | 0 | 0.0% | 24 | 4.8% | |
| Undecided | 56 | 17.1% | 0 | 0.0% | 21 | 14.0% | 3 | 17.6% | 80 | 16.0% | |
| Include | 218 | 66.7% | 6 | 85.7% | 120 | 80.0% | 14 | 82.4% | 358 | 71.5% | |
| Personal cost for patient | I don’t know OC | 34 | 10.4% | 1 | 14.3% | 4 | 2.7% | 1 | 5.9% | 40 | 8.0% |
| Exclude | 11 | 3.4% | 0 | 0.0% | 7 | 4.7% | 0 | 0.0% | 18 | 3.6% | |
| Undecided | 44 | 13.5% | 1 | 14.3% | 30 | 20.0% | 3 | 17.6% | 78 | 15.6% | |
| Include | 238 | 72.8% | 5 | 71.4% | 109 | 72.7% | 13 | 76.5% | 365 | 72.9% | |
| Cost utility analysis | I don’t know OC | 43 | 13.1% | 1 | 14.3% | 4 | 2.7% | 0 | 0.0% | 48 | 9.6% |
| Exclude | 11 | 3.4% | 0 | 0.0% | 6 | 4.0% | 0 | 0.0% | 17 | 3.4% | |
| Undecided | 70 | 21.4% | 1 | 14.3% | 16 | 10.7% | 4 | 23.5% | 91 | 18.2% | |
| Include | 203 | 62.1% | 5 | 71.4% | 124 | 82.7% | 13 | 76.5% | 345 | 68.9% | |
Ratings were given on a Likert scale ranging from 1 to 9. ‘Exclusion’ means 70% or more scoring it as 1–3 and fewer than 15% scoring it as 7–9. Consensus for an outcome being included in the core outcome set (COS) required 70% or more scoring it as 7–9 and fewer than 15% to score it as 1–3. HCP, health care professional; OC, outcome.