Table 3.

Hospital visits and hospital stays for MLD patients

	Total (N = 31)	US (n = 10)	Germany (n = 5)	UK (n = 5)	France (n = 8)
Number of outpatient visits in the previous 12 months
Mean (SD)	29.6 (41.7)	30.2 (26.1)	5.8 (3.8)	16.8 (17.6)	62.5 (65. 6)
Median (range)	15.0 (0 – 200)	22.0 (0 – 90.0)	5.0 (1.0 – 11.0)	12.0 (0 – 40.0)	43.0 (5.0 – 200)
Number of outpatient visits in the previous 4 weeks
Mean (SD)	2.8 (4.2)	3.2 (3.5)	0.6 (0.5)	1.2 (1.6)	5.8 (6.3)
Median (range)	1.0 (0 – 16)	2.5 (0 – 12.0)	1.0 (0 – 1.0)	1.0 (0 – 4.0)	2.0 (1.0 – 16.0)
Number of inpatient hospital visits in the previous 12 months
Mean (SD)	4.1 (9.7)	2.9 (3.0)	2.4 (2.3)	2.2 (1.8)	7.8 (19.1)
Median (range)	2.0 (0 – 55)	2.0 (0 – 9)	2.0 (0 – 6.0)	2.0 (0 – 5.0)	0.5 (0 – 55.0)
Number of inpatient hospital visits in the previous 4 weeks
Mean (SD)	0.6 (1.0)	0.7 (0.9)	0.4 (0.5)	0.6 (0.9)	0.6 (1.4)
Median (range)	0 (0 – 4)	0.5 (0 – 3.0)	0 (0 – 1.0)	0 (0 – 2.0)	0 (0- 4.0)
Inpatient hospital stays (days) in the previous 12 months
Mean (SD)	11.8 (18.3)	10.7 (10.8)	10.8 (14.1)	12.0 (10.5)	15.9 (32.7)
Median (range)	5.0 (0 – 95)	9.5 (0 – 33.0)	5.0 (0 – 35.0)	10.0 (0 – 28.0)	1.5 (0 – 95.0)
Inpatient hospital stays (days) in the previous 4 weeks
Mean (SD)	1.6 (3.7)	3.8 (5.8)	1.0 (1.7)	0.6 (0.9)	0.6 (1.4)
Median (range)	0 (0 – 14)	0.5 (0 – 14.0)	0 (0 – 4.0)	0 (0 – 2.0)	0 (0- 4.0)