Table 4.

Hospital Visits and Hospital Stays by Time Since Diagnosis

	Group A (n = 10)	Group B (n = 11)	Group C (n = 10)	P-value*
Number of outpatient visits in the previous 12 months
Mean (SD)	56.4 (62.9)	12.6 (12.7)	21.6 (21.1)
Median (range)	38.0 (0 – 200)	8.0 (1 – 40)	16.0 (0 – 65)	0.157
Number of outpatient visits in the previous 4 weeks
Mean (SD)	6.1 (6.1)	0.6 (0.9)	1.9 (1.7)
Median (range)	3.0 (0 – 16)	0.0 (0 – 3)	1.5 (0 – 5)	0.009
Number of inpatient hospital visits in the previous 12 months
Mean (SD)	9.1 (16.3)	2.0 (1.8)	1.3 (2.0)
Median (range)	3.5 (1 – 55)	2.0 (0 – 5)	0.5 (0 – 6)	0.012
Number of inpatient hospital visits in the previous 4 weeks
Mean (SD)	1.1 (1.4)	0.5 (0.7)	0.3 (0.7)
Median (range)	1.0 (0 – 4)	0.0 (0 – 2)	0.0 (0 – 2)	0.192
Inpatient hospital stays (days) in the previous 12 months
Mean (SD)	24.2 (27.2)	6.7 (8.4)	4.9 (6.8)
Median (range)	17.5 (3 – 95)	5.0 (0 – 28)	1.0 (0 – 15)	0.011
Inpatient hospital stays (days) in the previous 4 weeks
Mean (SD)	4.2 (5.6)	0.7 (1.3)	0.1 (0.3)
Median (range)	1.5 (0 – 14)	0.0 (0 – 4)	0.0 (0 – 1)	0.033

Group A: Caregivers of individuals with MLD who were diagnosed within the past ≤ 2 years; Group B: Caregivers of individuals with MLD who were > 2 and ≤ 6 years since diagnosis; Group C: Caregivers of individuals with MLD who were > 6 years since diagnosis; *P-value between groups A, B, C