Table 3.

Choices in the informed consent. Absolute and relative frequency distribution of answers to selected items of the informed consent among the baseline CHRIS participants.

Decision	Option in the consent form	Yes N (%)	No N (%)
Data sharing	Sharing codified data with research partners (with binding data transfer agreement)	13,347 (99.69%)	42 (0.31%)
	Sharing codified data with institutions that allow data access to the scientific research community (through databases)	13,199 (98.58%)	190 (1.42%)
Handling of data and samples in case of death or incapacity	In case of death or incapacity, samples and data will be available for research within the limit described by the consent	11,574 (86.45%)	N/A
	In case of death or incapacity, samples and data will be anonymized	1161 (8.67%)	N/A
	In case of death or incapacity, samples and data will be destroyed	653 (4.88%)	N/A
Re-contact for information and research	Re-contact for receiving information or re-consent to sub-studies/new studies	13,343 (99.66%)	46 (0.34%)

Data about the dynamic consent choices which are relevant for participation (data sharing, handling of data and samples in case of death or incapacity) and communication (re-contact for information and research) are shown. In this table, only data of participants who agreed to data storage for research purposes and biobank conservation are considered (N = 13,389).