Processes and procedures
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According to Hassan et al., participants spoke about the Life Rooms setting that facilitated easy access to many resources without additional costs and administrative burden (Narratives 1, 2).
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Carnes et al. noticed that a patient was pressed for time; that is, he or she had no time for thinking of SP (Narrative 3).
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This situation could be resulted from the fact that some interviewees were not sure what SP was and who the service delivery organization was, despite having been referred to (Narrative 4).
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This may be, in addition to the lack or insufficiency of culture and structure,
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because the people interviewed met so many different healthcare professionals that they had lost track of who they were seeing (Narratives 5, 6).
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A similar situation was also observed by Bertotti et al. (Narrative 7).
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Both service users and providers discussed the coconstructed and consultative nature of the service. Rather than being dictated to, patients felt assured that the process was very much about working together to decide on the best course of action (Narrative 8).
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An interview with a patient conducted by Bertotti et al. also confirmed the importance of giving the opportunity for patients to get involved in the process to have face‐to‐face sessions with SP coordinators (link workers) (Narrative 9).
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[in other services] you would have to fill in loads of forms or you would have to apply online or you would have to get some type of funding, but since I have been here, I have done loads of stuff and I have never been asked for a penny. (FGD3_SU)
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It could be is just me coming in and saying to (name) have you got time for a cup of coffee and a chat for ten minutes. That sort of conversation will sort me out if I was feeling a bit rough in the head, a bit fed up, just somebody talking to me like that, it doesn't have to be sitting with a counsellor. (FGD1_SU)
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I had too many other things going on [family crises]. (Practitioner not engaged)
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I have no idea who or what you are talking about, but sounds a good idea, I don’t know why I was referred… (Practitioner not engaged)
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I don’t know who she was [in terms of health care professional]…I can’t remember her name…errr but she was very nice. (Practitioner engaged)
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The problem is there are lots of services and lots of names, I get confused.’ (Practitioner partially engaged)
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I have no idea who or what you are talking about, but sounds a good idea, I don’t know why I was referred… (service user)
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I was free at any time to say ‘no I’m not comfortable with this I don’t like it’ and she [Wellbeing Coordinator] was very adamant that it would not affect me if she’d arranged it all and I’d have gone and then come back and said ‘no I can’t do this’ she’d have been fine with that. It was kind of all along how I felt and she made that very clear that any time that I didn’t feel comfortable with anything that she maybe suggested or got me to have a look at, if I didn’t like the idea it was no problem. (Female client: interview 3, aged 50 years and over. Referred to the social prescribing service by GP)
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You feel able to offload if you need to, discuss your fears – it's about not being so hard on myself and validating myself. (service user)
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Engagement and outcomes
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With respect to “engagement and outcomes”
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or “practice and review,”
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some people did not even believe in the first instance that they or their family members needed SP and benefitted from it (Narratives 1–6).
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,
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,
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For this reason, as Woodall et al. noticed, getting patients involved in the engagement in cooperation with link workers is important, since link workers (LW) are more empowered
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,
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(Narratives 7, 8).
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This kind of “coproduction” is also underpinned by Pescheny, Randhawa, and Pappas (Narrative 9).
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10
[The LW] said that both of us could go to [the group] the first time, so that she could help me make sure I was comfortable and that I had what I needed to do the class. She spoke to [the instructor] and introduced me to her. I felt a lot happier knowing I had someone I knew to go with me. [lines omitted] If someone had just told me to go, I don't think I would have gone. (Patient 8)
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You're kind of helping each other, because I think for most people [with this condition] you kind of feel that you're the only person on the whole of Plant Earth, you know. You don't seem to know how many other people [have this condition] so the fact that you can meet up with others is like, oh, there are other people that understand and know how it's difficult (…) and so, you were able to give each other encouragement or copy each other or learn from each other. (Patient 4)
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So, I didn't know there were people out there like me, and [LW] made me realise (…), there are lots of people out there like me and we're like a little tribe. And there's little places we can go and hook up and just kind of like talk about anything you want, or not talk at all. And I just think it saved me. Honestly, I don't know what would have happened. It terrifies me to think what would have happened. I think I would have got more ill, if I'm honest, because I was desperate. (Patient 3)
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You can come here for say 10 minutes, 20 minutes, half an hour and just those few minutes or second or that bit of time you spend with somebody here who's nice to you can make you feel a bit better but you are in charge of what you are doing. I think it's really, really important and just that little bit of control can you make feel on top of the world, you can go away thinking I did something really good today. (FGD1_SU)
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They give you a bit of a plan and they can help you along your way and they will always support you, if you come back and you go that did not work or I am having problems with this they can support you. (FGD5_SU)
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15
I had a person who declined […] she was a carer for a [man with dementia], she goes like: ‘Actually I have things to do, they take me out’. She actually felt that she did not need to get involved because she is already doing enough other things and getting support from other areas, so she did not feel the need. (GP1)
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And to be taken notice of. And to be looked on as a person as an individual as opposed to ‘oh just somebody else’. (Female client: interview 9, aged under 50 years. Referred to the social prescribing service by GP)
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It's that being able to talk to somebody, and somebody being willing to listen, I think that's the crux of it, and not being judgmental. (Male client: interview 12, aged under 50 years. Referred to the social prescribing service by GP)
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And I said that I also want something sort of that occupies my mind. And that is when she [social prescribing navigator] suggested the art class, which has been absolutely brilliant and exactly what I wanted […] and I explained on the physical side that I am severely limited. She printed out for me the gym programmes at the various health centres, so I could decide where I wanted to go. (Service user 3)
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