Table 1.
Analysis of urological oncology content on Pinterest (N=359).
| Characteristics | Urological oncology content | ||||||||
|
|
Bladder (n=61) | Kidney (n=100) | Prostate (n=98) | Testicular (n=100) | |||||
| Average number of followers, n | 152,591 | 109,716 | 364,917 | 76,273 | |||||
| Average number of repins, n (range) | 38 (1-521) | 59 (1-1361) | 2 (1-40) | 1 (1-15) | |||||
| Publisher type, n (%) | |||||||||
|
|
Health care–based | 9 (15) | 14 (14) | 18 (18) | 16 (16) | ||||
|
|
Consumer or patient | 5 (8) | 10 (10) | 2 (2) | 3 (3) | ||||
|
|
Foundational or advocacy group | 4 (7) | 8 (8) | 7 (7) | 16 (16) | ||||
|
|
Governmental | 2 (3) | 0 (0) | 1 (1) | 3 (3) | ||||
|
|
News source or media outlet | 1 (2) | 6 (6) | 11 (11) | 5 (5) | ||||
|
|
Commercial media or industry | 12 (20) | 12 (12) | 13 (13) | 13 (13) | ||||
|
|
Health and wellness | 28 (46) | 50 (50) | 41 (42) | 43 (43) | ||||
|
|
Unknown/other | 0 (0) | 8 (7.6) | 6 (6) | 1 (1) | ||||
| Race, n/N (%)a | |||||||||
|
|
Black | 0/43 (0) | 2/63 (3) | 2/39 (5) | 3/63 (5) | ||||
|
|
White | 41/43 (95) | 54/63 (88) | 30/39 (77) | 53/63 (84) | ||||
|
|
Asian | 0/43 (0) | 2/63 (3) | 0/39 (0) | 0/63 (0) | ||||
|
|
Unknown | 2/43 (5) | 3/63 (5) | 5/39 (13) | 7/63 (11) | ||||
| Ethnicity, n/N (%)a | |||||||||
|
|
Latinx | 0/43 (0) | 0/63 (0) | 0/39 (0) | 1/63 (1) | ||||
|
|
Non-Latinx | 41/43 (95) | 58/63 (92) | 32/39 (82) | 53/63 (84) | ||||
|
|
Unknown | 2/43 (5) | 3/63 (5) | 7/39 (18) | 9/63 (14) | ||||
| Characteristics discussed, n (%) | |||||||||
|
|
Anatomy | 15 (25) | 37 (37) | 33 (34) | 43 (43) | ||||
|
|
Symptoms | 16 (26) | 29 (29) | 14 (14) | 30 (30) | ||||
|
|
Detection | 4 (7) | 8 (8) | 10 (10) | 30 (30) | ||||
|
|
Treatment | 4 (7) | 8 (8) | 8 (8) | 10 (10) | ||||
|
|
Side effects of treatment | 0 (0) | 0 (0) | 2 (2) | 4 (4) | ||||
|
|
Lifestyle or dietary modification | 25 (41) | 21 (21) | 44 (45) | 8 (8) | ||||
| Commercial bias present, n (%) | 4 (7) | 1 (1) | 14 (14) | 0 (0) | |||||
| Misinformationb, n (%) | 16 (26) | 9 (9) | 15 (15) | 4 (4) | |||||
| Shared decision-making, n (%) | 1 (1) | 2 (2) | 3 (3) | 5 (5) | |||||
| Quality score ≤3, n (%) | 50 (82) | 87 (87) | 94 (96) | 67 (67) | |||||
| PEMATc understandability <75%, n (%) | 37 (61) | 62 (62) | 69 (70) | 30 (30) | |||||
| PEMAT actionability <75%, n (%) | 61 (100) | 100 (100) | 97 (99) | 100 (100) | |||||
a“N” refers to the total number of people depicted in pins and “n” refers to the specific number of people based on perceived race and ethnicity.
bLikert score >1 out of 5.
cPEMAT: Patient Education Materials Assessment Tool.