TABLE 1.
Participant characteristics
| 1. Needs survey | 2. Focus groups | 3. Validation survey | ||||
|---|---|---|---|---|---|---|
| Phase | Patients | Care partners | Patients | Care partners | Patients | Care partners |
| N | 50 a | 46 | 7 | 7 | 28 b | 12 |
| Age, years | 73 ± 8 c | 65 ± 12 c | 68 ± 6 | 70 ± 4 | 75 ± 7 c | 69 ± 6 c |
| Female (%) | 17 (41%) c | 25 (60%) c | 4 (57%) | 4 (57%) | 5 (18%) | 3 (25%) |
| Education, years | 11.8 ± 4.1 | 12.2 ± 4.4 | 12.3 ± 2.6 | 12.3 ± 2.6 | 12.3 ± 4.4 | 11.9 ± 4.1 |
| Relation to patient, n (%) | ||||||
| Spouse | N/A | 33 (72%) | N/A | 6 (86%) | N/A | 12 (100%) |
| (Grand)child | N/A | 12 (26%) | N/A | 0 | N/A | 0 |
| Sister/brother | N/A | 1 (2%) | N/A | 0 | N/A | 0 |
| Other | N/A | 0 | N/A | 1 (14%) | N/A | 0 |
|
Diagnosis of patient, n (%) d |
||||||
| SCD | 21 (42%) | 2 (4%) | 5 (71%) | 2 (29%) | 10 (36%) | 0 |
| MCI | 16 (32%) | 8 (17%) | 2 (29%) | 2 (29%) | 11 (39%) | 1 (8%) |
| Dementia | 13 (26%) | 36 (78%) | 0 (0%) | 3 (43%) | 7 (25%) | 11 (92%) |
Note: Data represent mean ± SD or n (%). The groups of participants in phase 2 and phase 3 are subgroups of the participants from phase 1.
Abbreviations: MCI, mild cognitive impairment; N/A, not applicable; SD, standard deviation; SCD, subjective cognitive decline.
a
Of whom n = 20 (44%) participated together with their care partner.
b
Of whom n = 10 (36%) participated together with their care partner.
c
Pairwise comparisons indicate a group difference (P < .05).
d
Self‐reported data.