Table 4.
Measures and scales registered in NorCog at baseline and source of information
| Main test domain | Measures and scales registered in NorCog | Source |
| Lifestyle/background | ||
| Demographic | Age, gender, education, occupational activity, marital status, children, living condition, informant (yes/no), relation to informant | I, P |
| Care resource use | Care provided by the municipality (hours per week) Private or family care (hours per week) |
I, P |
| Activities | Physical activity (hours per week and intensity) Social and cultural activity (hours per week) |
I, P |
| Stimulant use | Tobacco, alcohol, other substances | I, P |
| Safety | Driving, access to weapons, falls | I, P |
| Nutrition and natural functions | Involuntary weight loss? Unsatisfactory food intake? Incontinence? | I, P |
| ADLs | ||
| Personal ADL | Physical Self-Maintenance Scale | I |
| Instrumental ADL | Lawton Instrumental Activities of Daily Living Scale (instrumental activities of daily living) | I |
| Patient-reported outcome measures and caregiver situation | ||
| Caregiver distress | Relatives’ Stress Scale | I |
| Patient experience | Do you think your memory is worse than before? If yes, does this worry you? | P |
| Fatigue | Do you mostly feel strong and rested or tired? | P |
| Medical history | ||
| Present symptoms | Onset, course, type of symptoms Informant Questionnaire on Cognitive Decline in the Elderly |
I, P I |
| Family history | Dementia, other disorders of the CNS | I, P |
| Present or previous physical and/or psychiatric disease | Cerebrovascular, other CNS disorders, cancer, arthritis, cardiovascular, endocrine, kidney, chronic obstructive pulmonary disease, psychiatric disease | I, P |
| Medication | ||
| Current medication | ATC code and defined daily dose of regular medication | I, P |
| NPS | ||
| Overall NPS | Neuropsychiatric Inventory Questionnaire | I |
| Depression | Cornell Scale for Depression in Dementia | I |
| Montgomery and Aasberg Depression Rating Scale | P | |
| Neurocognitive tests | ||
| Global cognition | Mini-Mental State Examination | P |
| Clock Drawing Test | P | |
| Clinical Dementia Rating | C | |
| Memory | Ten-word recall test | P |
| Attention | Trail Making Test A and B | P |
| Fluency | Controlled Oral Word Association Test | P |
| Constructional praxis | CERAD figure copying (including recall) | P |
| Word retrieval | Boston Naming Test | P |
| Insight | Reed Scale for evaluation of anosognosia (lack of insight) | C |
| Somatic status | ||
| Physical and neurological examination | Blood pressure, pulse, weight, height, gait speed, chair stand, balance test, vision, hearing, auscultation of neck, central facial paresis, plantar reflex, gait, rigidity, spasticity, hypokinesia, tremor, Romberg’s test | D |
| Blood test results | Haemoglobin, thrombocytes, CRP, s-cholesterol, Na, K, Ca, S-folate, homocysteine, vitamin B12, TSH, T4, ALP, SR, ALAT, G-GT, albumin, creatinine, vitamin D, HbA1C | D |
| CSF test results | Beta-amyloid, total tau, phosphorylated tau | D |
| Brain imaging | Structural and functional (yes/no): CT, MRI, PET, DAT, SPECT, EEG | D |
| Clinical evaluation | ||
| Baseline diagnosis | ICD-10 codes/SCI, MCI, dementia (AD, VaD, FTD, DLB, PDD, unspecified), other | C |
| Recommended follow-up | Specialist healthcare, primary healthcare, support for caregivers | C |
AD, Alzheimer’s disease; ADLs, activities of daily living; ALAT, alanine aminotransferase; ALP, alkaline phosphatase; ATC, Anatomical Therapeutic Chemical; C, clinical evaluation; Ca, calcium; CERAD, Consortium to Establish a Registry for Alzheimer's Disease; CNS, central nervous system; CRP, C reactive protein; CSF, cerebrospinal fluid; D, direct test; DAT, dopamine transporter; DLB, dementia with Lewy bodies; EEG, electroencephalogram; FTD, frontotemporal dementia; G-GT, gamma-glutamyl transferase; HbA1C, haemoglobin A1c; I, informant; K, potassium; MCI, mild cognitive impairment; Na, sodium; NorCog, Norwegian Registry of Persons Assessed for Cognitive Symptoms; NPS, Neuropsychiatric symptom; P, patient; PDD, Parkinson’s disease dementia; PET, positron emission tomography; SCI, subjective cognitive impairment; SPECT, single-photon emission CT; SR, sedimentation rate; T4, thyroxine; TSH, thyroid-stimulating hormone; VaD, vascular dementia.