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. 2022 Aug 30;24(8):e40096. doi: 10.2196/40096

Table 1.

iCanCope with sickle cell disease program content and delivery for youth.

iCanCope with SCDa program Content delivery
Content category Example content Website App
Introduction to the program General information about the iCanCope with SCD program and what to expect Yes Yes
About pain management 3Ps of pain management (psychological, physical, and pharmacological strategies) Yes Yes
About SCD and treatment Genetics, potential impact of SCD on daily life, and treatment options Yes Yes
Goal setting Guidance on how to formulate specific, measurable, achievable, relevant, and timebound goals; a feature within the smartphone app where users could set and track personalized goals to improve activity, mood, and sleep Yes Yes
Symptom tracking A feature within the smartphone app where users could report daily pain intensity, pain impact, mood, and sleep quality and view their symptom trends N/Ab Yes
History A feature within the smartphone app where users could view previously reported symptoms N/A Yes
Community support A forum feature within the smartphone app where users could post responses to community questions and “favorite” the posts of other app users N/A Yes
Stress, relaxation, and negative emotions Reducing negative thoughts, thought stopping, deep breathing exercises, muscle relaxation, imagery, scheduling pleasant activities, and finding the positives Yes Yes
Sleep and insomnia Pain and sleep, healthy sleep habits, ways to fall and stay asleep, and how to think differently about sleep Yes Yes
Communication and self-advocacy Communication skills, talking with the health care team, and talking with the school Yes Yes
Healthy lifestyle and looking ahead Pacing, graded activity, hydration, considerations for the future, and transition to adult health care Yes Yes

aSCD: sickle cell disease.

bN/A: not applicable.