Table 1.
iCanCope with SCDa program | Content delivery | ||
Content category | Example content | Website | App |
Introduction to the program | General information about the iCanCope with SCD program and what to expect | Yes | Yes |
About pain management | 3Ps of pain management (psychological, physical, and pharmacological strategies) | Yes | Yes |
About SCD and treatment | Genetics, potential impact of SCD on daily life, and treatment options | Yes | Yes |
Goal setting | Guidance on how to formulate specific, measurable, achievable, relevant, and timebound goals; a feature within the smartphone app where users could set and track personalized goals to improve activity, mood, and sleep | Yes | Yes |
Symptom tracking | A feature within the smartphone app where users could report daily pain intensity, pain impact, mood, and sleep quality and view their symptom trends | N/Ab | Yes |
History | A feature within the smartphone app where users could view previously reported symptoms | N/A | Yes |
Community support | A forum feature within the smartphone app where users could post responses to community questions and “favorite” the posts of other app users | N/A | Yes |
Stress, relaxation, and negative emotions | Reducing negative thoughts, thought stopping, deep breathing exercises, muscle relaxation, imagery, scheduling pleasant activities, and finding the positives | Yes | Yes |
Sleep and insomnia | Pain and sleep, healthy sleep habits, ways to fall and stay asleep, and how to think differently about sleep | Yes | Yes |
Communication and self-advocacy | Communication skills, talking with the health care team, and talking with the school | Yes | Yes |
Healthy lifestyle and looking ahead | Pacing, graded activity, hydration, considerations for the future, and transition to adult health care | Yes | Yes |
aSCD: sickle cell disease.
bN/A: not applicable.