Table 3.
Characteristics of youth participants.
| Characteristic | Youth value (N=57) | |
| Age (years), mean (SD) | 14.8 (2.0) | |
| Sex, n (%) |
|
|
|
|
Female | 34 (60) |
|
|
Male | 23 (40) |
| Gender identitya, n (%) |
|
|
|
|
Female | 34 (60) |
|
|
Male | 23 (40) |
| Race, n (%) |
|
|
|
|
American Indian | 1 (2) |
|
|
Black | 53 (93) |
|
|
Latino/Hispanic | 1 (2) |
|
|
Asian | 2 (4) |
| Ethnicityb, n (%) |
|
|
|
|
Hispanic | 5 (9) |
|
|
Non-Hispanic | 46 (84) |
|
|
Unknown | 4 (7) |
| SCDc genotyped, n (%) |
|
|
|
|
Hemoglobin SS | 35 (66) |
|
|
Hemoglobin SC | 12 (23) |
|
|
Hemoglobin S beta thal plus | 3 (6) |
|
|
Hemoglobin S beta thal zero | 2 (4) |
|
|
Unknown | 1 (2) |
| SCD Pain Burden Interview score, mean (SD) | 10.9 (5.8) | |
| Currently taking hydroxyurea, n (%) | 40 (70) | |
| Receiving regular blood transfusions, n (%) | 8 (14) | |
aResponse options were available for additional gender identities including transgender.
bMissing for ethnicity (n=2).
cSCD: sickle cell disease.
dMissing for SCD genotype (n=4).