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. 2022 Sep 7;23:e54. doi: 10.1017/S146342362200024X

Table 3.

Main themes and associated subsections

Main themes Subsections
Having symptoms and signs with an unknown cause Symptoms, signs and triggers
Worries: one’s own and others’
Dealing with the symptoms and signs Self-care
Seeking information
Being a patient without a diagnosis Lack of information and coordination
Being met with belief
Being erroneously diagnosed