Table 5.
Areas where PPI influenced the research. Inspired by the Public and Patient Engagement Evaluation Tool (PPEET)
| Type of influence | Amount of influence | PPI stage involved | Comment |
|---|---|---|---|
| Choice of population and intervention category | Moderate | Informal PPI (stage 1) | Set before formal PPI started |
| Choice of trial outcome measures | Large |
Informal PPI (stage 1) Online Questionnaire (stage 2) Charity Collaborator (stage 3) |
Formal PPI informed the choice of specific outcomes from a range of possibilities and their definitions (for example timepoint assessed) |
| Areas for exploratory analysis | Moderate |
Informal PPI (stage 1) Online Questionnaire (stage 2) |
Formal PPI confirmed areas of focus and provided more detail on questions of interest |
| Trial design – minimising adding to anxiety over milk yield | Large |
Online Questionnaire (stage 2) Charity Collaborator (stage 3) Online Panels (stage 4) |
Amendments to processes and documents |
| Trial design – minimising burden for participants | Large |
Online Questionnaire (stage 2) Charity Collaborator (stage 3) Online Panels (stage 4) |
Amendments to processes and documents. Some areas of tension decided by researchers |
| Trial modifications in response to challenges | Small | Trial Steering Committee (stage 6) | Consultation. Areas of disagreement decided by researchers |
| Intervention content | Very Large |
Informal PPI (stage 1) Online Questionnaire (stage 2) RCT Intervention Modification Exercise (stage 5) |
Iterative changes with detailed PPI input. Some disagreement among participants – final decision by researchers |
| Dissemination plan | Very Large | Online Questionnaire (stage 2) | Detailed list of vehicles of communication for dissemination provided by PPI, along with assessment of most significant channels |
| Future research topics | Large |
Informal PPI (stage 1) Online Questionnaire (stage 2) |
Broad range of questions posed |
The Public and Patient Engagement Evaluation Tool has been licensed under a Creative Commons Attribution-NonCommercial-Share Alike 4.0 International License.©2018, Julia Abelson and the PPEET Research-Practice Collaborative. McMaster University. All rights reserved