Table 1.
Patient characteristics stratified by recruiting clinic (n=57).
| Clinic A | Clinic B | Total | p-value* | |
|---|---|---|---|---|
| Number of participants, n (%) | 37 (65) | 20 (35) | 57 (100) | |
| Participation in ACCS | <0.001 | |||
| - Group 2 survivors | 20 (35) | 20 (35) | 40 (70) | |
| - Group 1 survivors | 17 (30) | 0 | 17 (30) | |
| Sex | 0.968 | |||
| - female | 22 (39) | 12 (21) | 34 (60) | |
| - male | 15 (26) | 8 (14) | 23 (40) | |
| Age at diagnosis [years] (reported by physician) Median (IQR) | 8 (4–13) range: 1–16 | 14 (5–16) range: 1–19 | 9 (4–14) range: 1–19 | 0.089 |
| Age at survey [years]Median (IQR) | 24 (21–27) range 18–35 | 22 (20–25) range 18–29 | 23 (21–27) range: 18–35 | 0.108 |
| Current health status1 Median (IQR) | 9 (8–10) range: 6–10 | 8 (7–9) range: 5–10 | 9 (8–9) range: 5–10 | 0.204 |
| Type of follow-up care | 0.004 | |||
| - Joint clinics2 | 21 | 1 | 22 (39) | |
| - Adult hospital alone | 11 | 14 | 25 (44) | |
| - Family physician and organs-specific specialists | 0 | 1 | 1 (2) | |
| - Family physician only | 2 | 0 | 2 (3) | |
| - Follow-up terminated | 0 | 1 | 1 (2) | |
| - Other3 | 2 | 2 | 4 (7) | |
| - Missing | 1 | 1 | 2 (3) | |
| Type of cancer (reported by physician) | ||||
| - Leukemia | 15 | 6 | 21 (37) | |
| - Lymphoma | 7 | 2 | 9 (16) | |
| - Tumors of the central nervous system | 3 | 1 | 5 (9) | |
| - Neuroblastoma | 0 | 1 | 1 (2) | |
| - Nephroblastoma | 2 | 2 | 4 (7) | 0.138 |
| - Soft tissue sarcoma | 1 | 3 | 4 (7) | |
| - Ewing sarcoma | 4 | 1 | 5 (9) | |
| - Osteosarcoma | 0 | 3 | 3 (5) | |
| - Germ cell tumors | 3 | 1 | 3 (5) | |
| - Other types of cancer | 2 | 0 | 2 (3) |
*Chi-squared test for categorical variables, t-test for continuous variables; bold values represent significant p-values <0.05.
1Subjective assessment of current health status when answering the questionnaire, range from 0 = not at all satisfied to 10 = satisfied a lot.
2Joint clinics combine pediatric and adult disciplines for long-term follow-up care.
3Orthopedists only, moved abroad, unsure about the current situation.