TABLE 1.
Overview of data collected in pulmonary hypertension (PH) registries
| NIH 1987 | French 2006 | Swedish 2007 | PHC 2007 | Scottish 2007 | REVEAL 2010 | ASPIRE 2012 | UK 2012 | Spanish 2012 | COMPERA 2012 | |
| Incidence/prevalence | - | x | x | - | x | x | - | x | x | - |
| PH (sub)groups | - | x | - | - | x | x | x | - | x | - |
| Demographics | x | x | x | x | - | x | x | x | x | x |
| Symptoms | x | x | - | - | - | x | - | x | x | - |
| Diagnostic delay | x | x | - | - | - | x | - | x | x | - |
| PFT | x | x | x | x | - | x | x | x | - | - |
| Haemodynamic parameters | x | x | x | x | - | x | x | x | x | x |
| Treatment practices | - | x | x | x | - | x | x | x | - | x |
| Outcome and predictors | x | x | x | x | - | x | x | x | x | x |
| Oral anticoagulation | - | - | - | x | - | x | - | - | - | x |
| Risk stratification | - | x | - | - | - | x | - | x | x | x |
NIH: National Institutes of Health; PHC: Pulmonary Hypertension Connection; REVEAL: Registry to Evaluate Early and Long-Term Pulmonary Arterial Hypertension; ASPIRE: Assessing the Spectrum of Pulmonary Hypertension Identified at a Referral Centre; COMPERA: Comparative, Prospective Registry of Newly Initiated Therapies for Pulmonary Hypertension; PFT: pulmonary function test.