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. Author manuscript; available in PMC: 2023 Sep 1.
Published in final edited form as: Contemp Clin Trials. 2022 Aug 19;120:106884. doi: 10.1016/j.cct.2022.106884

Table 1.

Strategies used in our pilot study to facilitate recruitment and retention of a study population of underserved children and families.

Goal Potential barrier Strategy to overcome barrier

Elicit the perspectives of traditionally underserved children and families on the intervention of interest Lack of end-user and community engagement in intervention protocol development Conduct iterative, qualitative interviews with multi-level stakeholders (children and families, school nurses, clinical staff, etc.) to adapt intervention to meet needs of children and families
Recruit traditionally underserved populations into clinical trials Medical practices without racial, ethnic, or income diversity Select practices with higher percentage of children and families that are medically underserved for study participation
Patients from minority groups prefer to learn about studies from providers of their own race or ethnicity Recruit physicians from minority racial and ethnic groups to participate in clinical trial recruitment
Medical provider without enough time to identify children at higher risk for asthma morbidity Practice managers flag children with poorly controlled asthma, thus identifying a population disproportionally impacted by morbidity
Mistrust in medical research and recruitment personnel Allow the child’s pediatrician to initially introduce the study to families
Emphasize the intervention partnership with trusted community members (i.e. school nurses)
Maintain consistent study staff for longitudinal assessments with the family to build trust and rapport
Recruit Spanish-speaking populations Lack of Spanish language study materials/services Translate all study materials (consent, surveys, etc.) into Spanish Conduct phone assessments with Spanish-speaking study staff or interpreter
Retain underserved populations to study completion Inadequate access to childcare, reliable transportation, and inability to miss work for in-person study assessments Conduct surveys remotely, eliminating need for office visits
Compensation occurs a long time after study involvement Send out electronic gift cards immediately after follow-up surveys completed
Compensation not useful to participants Ensure payment occurs via electronic gift cards to retailers present in the community (e.g. Walmart or Target), asking the participants about their preference
Include populations without stable Wi-Fi Lack of stable Wi-Fi Conduct interactions with research staff via phone rather than video conferencing or email. Allow for sending of REDCap surveys using text links, as most families have text-enabled phones