Table 4.
Frequency of survivorship care practice of each item (n = 181).
Itemsa | Never |
Occasionally |
Often |
Very often |
All of the time |
Delivery statusb |
||||||
---|---|---|---|---|---|---|---|---|---|---|---|---|
n | %c | n | %c | n | %c | n | %c | n | %c | n | % | |
Prevention | ||||||||||||
As appropriate, discussing information on known effective chemoprevention strategies for secondary prevention | 85 | 47.0 | 78 | 43.1 | 12 | 6.6 | 2 | 1.1 | 3 | 1.7 | 17 | 9.4 |
Discuss information on genetic counseling and testing to identify high-risk individuals who could benefit from more comprehensive cancer surveillance, chemoprevention, or other risk-reducing treatment | 147 | 81.2 | 23 | 12.7 | 8 | 4.4 | 2 | 1.1 | 1 | 0.6 | 11 | 6.1 |
Intervention | ||||||||||||
Discussing and managing pain | 12 | 6.6 | 31 | 17.1 | 53 | 29.3 | 36 | 19.9 | 48 | 26.5 | 137 | 75.7 |
Discussing and managing long-term physical side effects/late effects | 17 | 9.4 | 59 | 32.6 | 55 | 30.4 | 21 | 11.6 | 28 | 15.5 | 104 | 57.5 |
Discussing psychological side effects | 18 | 9.9 | 74 | 40.9 | 45 | 24.9 | 30 | 16.6 | 14 | 7.7 | 89 | 49.2 |
Discussing and encouraging appropriate exercise and physical activity | 18 | 9.9 | 74 | 40.9 | 54 | 29.8 | 25 | 13.8 | 10 | 5.5 | 89 | 49.2 |
Encouraging health behaviors including sunscreen use, smoking and alcohol consumption | 20 | 11.0 | 78 | 43.1 | 49 | 27.1 | 17 | 9.4 | 17 | 9.4 | 83 | 45.9 |
Providing healthy diet recommendations including alcohol consumption | 19 | 10.5 | 79 | 43.6 | 56 | 30.9 | 15 | 8.3 | 11 | 6.1 | 82 | 45.3 |
Providing health education to survivors regarding their diagnoses, treatment exposures, and potential late and long-term effects | 31 | 17.1 | 75 | 41.4 | 44 | 24.3 | 14 | 7.7 | 16 | 8.8 | 74 | 40.9 |
Conducting distress screening for psychological risks | 44 | 24.3 | 64 | 35.4 | 38 | 21.0 | 12 | 6.6 | 23 | 12.7 | 73 | 40.3 |
Discussing and managing parenting and other help at home | 29 | 16.0 | 97 | 53.6 | 37 | 20.4 | 15 | 8.3 | 3 | 1.7 | 55 | 30.4 |
Providing resources to assist with financial and insurance issues | 59 | 32.6 | 87 | 48.1 | 24 | 13.3 | 6 | 3.3 | 5 | 2.8 | 35 | 19.3 |
Discussing and managing employment and financial consequences of cancer | 63 | 34.8 | 91 | 50.3 | 19 | 10.5 | 6 | 3.3 | 2 | 1.1 | 27 | 14.9 |
Discussing patient/family peer support groups | 67 | 37.0 | 86 | 47.5 | 15 | 8.3 | 8 | 4.4 | 3 | 1.7 | 26 | 14.4 |
Discussing and managing intimacy and sexuality issues | 73 | 40.3 | 85 | 47.0 | 15 | 8.3 | 6 | 3.3 | 2 | 1.1 | 23 | 12.7 |
Discussing and managing fertility issues | 108 | 59.7 | 66 | 36.5 | 4 | 2.2 | 3 | 1.7 | 0 | 0.0 | 7 | 3.9 |
Surveillance | ||||||||||||
Addressing psychological impacts from their fear of cancer recurrence/relapse | 21 | 11.6 | 85 | 47.0 | 39 | 21.5 | 20 | 11.0 | 16 | 8.8 | 75 | 41.4 |
Carrying out medical check-ups at follow-up, including taking history | 66 | 36.5 | 64 | 35.4 | 21 | 11.6 | 13 | 7.2 | 17 | 9.4 | 51 | 28.2 |
Providing screening recommendations for second cancers; periodic testing and examination, and the schedule on which they should be performed | 78 | 43.1 | 72 | 39.8 | 19 | 10.5 | 6 | 3.3 | 5 | 2.8 | 30 | 16.6 |
Providing information about how to identify signs of cancer spreading or recurrence | 62 | 34.3 | 90 | 49.7 | 20 | 11.0 | 4 | 2.2 | 5 | 2.8 | 29 | 16.0 |
Coordination | ||||||||||||
Empowering survivors to advocate for their own healthcare needs | 36 | 19.9 | 76 | 42.0 | 39 | 21.5 | 20 | 11.0 | 10 | 5.5 | 69 | 38.1 |
Providing information on who to contact with questions and problems | 34 | 18.8 | 88 | 48.6 | 37 | 20.4 | 9 | 5.0 | 13 | 7.2 | 59 | 32.6 |
Communicating the survivorship care provided with the rest of the healthcare team | 47 | 26.0 | 76 | 42.0 | 31 | 17.1 | 18 | 9.9 | 9 | 5.0 | 58 | 32.0 |
Using treatment summaries and/or care plans | 73 | 40.3 | 52 | 28.7 | 33 | 18.2 | 12 | 6.6 | 11 | 6.1 | 56 | 30.9 |
Ensuring linkage with appropriate external supportive services | 65 | 35.9 | 73 | 40.3 | 24 | 13.3 | 12 | 6.6 | 6 | 3.3 | 42 | 23.2 |
Organizing/ensuring the patient has a schedule of follow-up appointments with the cancer care doctors | 84 | 46.4 | 60 | 33.1 | 20 | 11.0 | 8 | 4.4 | 8 | 4.4 | 36 | 19.9 |
Communicating the survivorship care provided with the patient's primary healthcare providers | 74 | 40.9 | 73 | 40.3 | 22 | 12.2 | 7 | 3.9 | 5 | 2.8 | 34 | 18.8 |
Providing referrals to specialists and resources as indicated | 97 | 53.6 | 59 | 32.6 | 11 | 6.1 | 9 | 5.0 | 5 | 2.8 | 25 | 13.8 |
Ensuring the patient has a schedule of follow-up appointments with primary healthcare providers | 92 | 50.8 | 66 | 36.5 | 12 | 6.6 | 6 | 3.3 | 4 | 2.2 | 22 | 12.2 |
Items on each subscale were ranked in descending order according to the delivery status.
Delivery status were the extent of responses from often to all of the time.
The total numbers do not equal 181 because of missing data.