Skip to main content
editorial
. 2021 Oct 13;52(10):4625–4645. doi: 10.1007/s10803-021-05316-x

Table 1.

Summary of recommendations to improve alignment of NDBIs with the neurodiversity paradigm

Overall area Description Practical recommendations
Centering autistic voices Clinicians and researchers should seek out input from Autistic individuals regarding intervention goals and implementation, as certain social and behavioral goals may be harmful to Autistic people’s well-being, as might pathology language and assumptions

Hire Autistic consultants

 Are the goals appropriate and respectful?

 Is the intensity appropriate?

 Is the implementation appropriate and respectful?

Hire Autistic interventionists

Provide psychoeducation related to neurodiversity to parents (in collaboration with Autistic consultants/employees) as early as the first diagnostic feedback session

Encourage autism acceptance

Direct attention to child strengths

Suggest alternatives to pathology language

Improving social and ecological validity

Social validity must be assessed in all intervention contexts, particularly from the perspective of the Autistic client

More needs to be known about the extent to which community NDBIs reflect the core values of both NDBIs and neurodiversity

Include social validity measures in all NDBI research trials

 For example, the STP (Berger et al., 2016)

 Include self-report measures if possible

Include measures of Quality of Life to ensure correspondence between intervention and real-life outcomes

Develop measures of social validity for non-speaking individuals

Survey community providers

Ensure measures of social validity are statistically validated to limit subjectivity

Evaluate cultural biases and acknowledge cultural differences

Improved research design

Participatory action research

Disclosure of conflicts of interest

Reporting of adverse events

Adaptive treatment designs

Include stakeholders, particularly Autistic ones, from the beginning of all research projects

Intervention researchers must disclose any potential COI related to the intervention being investigated

All behavioral intervention trials must assess adverse events, including psychological distress

Allow for flexibility in research such that interventions can be individualized