Table 2.
Responses to the Negative Healthcare Experiences Index ranked by frequency among participants in the Counting Ourselves survey with a primary care doctor or GP in 2018 (N = 948).
| Ranking | Negative Healthcare Experiences Index items | Overall | By gendera | |||
|---|---|---|---|---|---|---|
| TW | TM | NB AFAB |
NB AMAB |
|||
| n (%) | n (%) | n (%) | n (%) | n (%) | ||
| 1 | You had to teach someone about trans or non-binary people so that you could get appropriate care | 446 (47.0) | 124 (44.9) | 175 (64.1) | 120 (39.2) | 25 (27.5) |
| 2 | You were asked unnecessary or invasive questions about being trans or non-binary that were not related to the reason for your visit | 352 (37.1) | 109 (39.5) | 135 (49.5) | 84 (27.5) | 22 (24.2) |
| 3 | You were told they don’t know enough about gender-affirming care to provide it | 262 (27.6) | 72 (26.1) | 110 (40.3) | 64 (20.9) | 14 (15.4) |
| 4 | A provider knowingly referred to you by the wrong gender, either in person or in a referral | 251 (26.5) | 63 (22.8) | 106(38.8) | 68 (22.2) | 13 (14.3) |
| 5 | A provider knowingly used an old name that you are no longer comfortable with | 198 (20.9) | 50 (18.1) | 83 (30.4) | 54 (17.6) | 10 (11.0) |
| 6 | A provider thought the gender listed on your ID or forms was a mistake | 185 (19.5) | 46 (16.7) | 84 (30.8) | 47 (15.4) | 7 (7.7) |
| 7 | A provider used hurtful or insulting language about trans or non-binary people | 173 (18.2) | 43 (15.6) | 71 (26.0) | 46 (15.0) | 11 (12.1) |
| 8 | You were discouraged from exploring your gender | 160 (16.9) | 39 (14.1) | 54 (19.8) | 55 (18.0) | 11(12.1) |
| 9 | You could not access an appropriate bathroom | 149 (15.7) | 21 (7.6) | 51 (18.7) | 67 (21.9) | 10 (11.0) |
| 10 | You were told that you were not really trans or non-binary | 138 (14.6) | 37 (13.4) | 47 (17.2) | 42 (13.7) | 11 (12.1) |
| 11 | A provider refused to discuss or address gender-affirming healthcare | 135 (14.2) | 39 (14.1) | 49 (17.9) | 38 (12.4) | 8 (8.8) |
| 12 | A provider belittled or ridiculed you for being trans or non-binary | 85 (9.0) | 26 (9.4) | 31 (11.4) | 25 (8.2) | 2 (2.2) |
| 13 | Refused to provide you with a referral for gender-affirming care | 85 (9.0) | 27 (9.8) | 36 (13.2) | 20 (6.5) | 2 (2.2) |
| 14 | You were refused care or had care ended because you are trans or non-binary | 82 (8.5) | 26 (9.4) | 34 (12.5) | 16 (5.2) | 4 (4.4) |
| 15 | A provider examined your body when you thought it was inappropriate or it was not clear why it was necessary | 57 (6.0) | 26 (9.4) | 16 (5.9) | 10 (3.3) | 4 (4.4) |
| 16 | You were placed in an incorrect hospital ward for your gender | 52 (5.5) | 15 (5.4) | 22 (8.1) | 13 (4.2) | 2 (2.2) |
| 17 | A provider was physically rough or abusive when treating you | 43 (4.5) | 12 (4.3) | 17 (6.2) | 10 (3.3) | 3 (3.3) |
| 18 | A provider refused to examine parts of your body because you are trans or non-binary | 18 (1.9) | 6 (2.2) | 6 (2.2) | 5 (1.6) | 0 |
| Mean (SD) | Mean (SD) | Mean (SD) | Mean (SD) | Mean (SD) | ||
| Number of items selected | 3.03 (3.57) | 2.83 (3.34) | 4.12 (3.83) | 2.56 (3.43) | 1.75 (2.81) | |
Two nonbinary participants did not report their sex assigned at birth. AFAB, assigned female at birth; AMAB, assigned male at birth; NB, nonbinary gender, TM, transgender men; TW, transgender women.