Table 1.

Characteristics of the included QLR articles

Continents	n (%)
Europe	141 (47.2)
North America	85 (28.4)
Oceania	33 (11.0)
Africa	23 (7.7)
Asia	10 (3.3)
South America	3 (1.0)
Several continents	3 (1.0)
Population (Articles could include several types of populations)	n (%)
Patients (individuals with a health condition)	122 (40.8)
Family members/caregivers	72 (24.1)
Community members (citizens, people in low income areas, volunteers)	63 (21.1)
Health care providers	61 (20.4)
Students or pupils (mostly health care education)	26 (8.7)
Policy makers	14 (4.7)
Managers	15 (5.0)
Teachers	7 (2.3)
US national news organizations	1 (0.3)
Phenomena of interest	n (%)
Disease experience/beliefs	52 (17.4)
Health care navigation and/or health care-patient relationships	48 (16.1)
Experiences with health care trials/interventions or treatment	43 (14.4)
Implementation of health care practices/routines	32 (10.7)
Life transitions and development (pregnancy, breastfeeding, parenthood, adolescence, aging)	23 (7.7)
Societal adversities (violence, housing, drug addiction, criminality)	22 (7.4)
Health care providers’ professional development	20 (6.7)
Education	18 (6.0)
Family caregiving	14 (4.7)
Health behaviors and sports (e.g., physical activity, smoking cessation, talent development)	11 (3.7)
Policy development and social reform	5 (1.7)
Experience of technology (assistive technology, aids and adaptations)	4 (1.3)
Disaster experiences (flooding, earthquakes)	3 (1.0)
Context (from which participants were recruited. Articles could have several contexts)	n (%)
Health-care/patient associations	194 (64.9)
Specialist care/Hospital	84 (28.1)
Emergency/intensive/neonatal care	15 (5.0)
Primary care	12 (4.0)
Residential homes/nursing homes	7 (2.3)
Community	46 (15.8)
Schools/universities	32 (10.7)
Social services/community services, volunteer organizations, prison	27 (9.0)
Rural	11 (3.7)
Urban	16 (5.4)
Socially vulnerable area	25 (8.63)
Diversity of contexts (e.g., rural and urban area)	14 (4.7)