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. 2022 Sep 21;43:1605025. doi: 10.3389/phrs.2022.1605025

TABLE 2.

Characteristics of included databases by data custodians (scoping review, China, 1946–2020).

Data custodian
Government agencies Research institutes/universities Other
Details of owners Mainly owned by CDC and CDC affiliated institutes, such as National Institute for Communicable Disease Prevention and Control, National Institute for Nutrition and Health etc. Independent research institutes and university affiliated institutes Mainly hospitals leading specific disease registries
Types of diseases covered Majority of communicable diseases and common NCD databases and all databases of injuries and maternal and child health Disease registries of NCDs Disease registries of NCDs with relatively lower prevalence such as rare disease registries
Types of databases Surveillance Disease registry Disease registry
Aggregated data availability Aggregated data available online without application, for most of the CDC owned databases Only small numbers of databases with aggregated data available online Mostly unknown availability
Individual data availability Most of the CDC owned databases are publicly available and individual records are available by application with potential cost if data requires extra processing or data are requested in non-electronic forms; some databases only have aggregated data available and the availability of individual records is unknown Mostly unknown Mostly unknown