Table 5. Presence of Information in Cancer Family History Observations in the EHR on Age at Onset by Sex, Race and Ethnicity, and Language Preference.
| Characteristic | Age at onset specified in observations, No. (%) [95% CI] | |||||
|---|---|---|---|---|---|---|
| UHealth (n = 684 861) | NYULH (n = 1 154 161) | |||||
| Yes (n = 7698) | No (n = 677 163) | P value | Yes (n = 26 467) | No (n = 1 127 685) | P value | |
| Sex | ||||||
| Women | 5456 (1.3) [1.3-1.3] | 415 140 (98.7) [98.7-98.7] | <.001 | 21 288 (3.0) [2.9-3.0] | 697 581 (97.0) [97.0-97.1] | <.001 |
| Men | 1517 (0.8) [0.8-0.8] | 189 955 (99.2) [99.2-99.2] | 5185 (1.2) [1.2-1.2] | 429 893 (98.8) [98.8-98.8] | ||
| Not documented in EHR | 725 (1.0) [0.9-1.1] | 72 068 (99.0) [98.9-99.1] | 3 (1.4) [0.4-1.4] | 211 (98.6) [95.7-99.6] | ||
| Race | ||||||
| Asian | 223 (1.1) [1.0-1.3] | 19 465 (98.9) [98.7-99.0] | .41 | 1678 (2.1) [2.0-2.2] | 76 897 (97.9) [97.8-98.0] | <.001 |
| Black | 86 (0.8) [0.6-1.0] | 10 979 (99.2) [99.0-99.4] | 2892 (2.0) [1.9-2.0] | 141 619 (98.0) [98.0-98.1] | ||
| Native Hawaiian or other Pacific Islander | 47 (0.6) [0.5-0.8] | 7456 (99.4) [99.2-99.5] |
69 (1.7) [1.3-2.1] | 4047 (98.3) [97.9-98.7] | ||
| White | 5896 (1.2) [1.2-1.2] |
491 733 (98.8) [98.8-98.8] | 16 112 (2.5) [2.4-2.5] | 633 548 (97.5) [97.5-97.6] | ||
| Othera | 626 (0.9) [0.9-1.0] | 65 648 (99.1) [99.0-99.1] | 3137 (2.3) [2.3-2.4] | 130 154 (97.6) [97.6-97.7] | ||
| Not documented in EHR | 820 (1.0) [0.9-1.1] | 81 882 (99.0) [98.9-99.1] | 641 (1.6) [1.5-1.8] | 38 883 (98.4) [98.2-98.5] | ||
| Refused to answer | NA | NA | 2010 (1.9) [1.8-2.0] | 102 537 (98.1) [98.0-98.2] | ||
| Ethnicity | ||||||
| Hispanic to Latino | 729 (1.0) [0.9-1.1] | 72 883 (99.0) [98.9-99.1] | .02 | 4277 (1.9) [1.9-2.0] | 215 826 (98.1) [98.0-98.1] | <.001 |
| Non-Hispanic or non-Latino | 6093 (1.2) [1.1-1.2] | 518 504 (98.8) [98.8-98.9] | 18 351 (2.5) [2.4-2.5] | 722 842 (97.5) [97.5-97.6] | ||
| Not documented in EHR | 876 (1.0) [0.9-1.1] | 85 776 (99.0) [98.9-99.1] | 3848 (2.0) [1.9-2.1] | 189 017 (98.0) [97.9-98.1] | ||
| Language preference | ||||||
| English | 6754 (1.2) [1.1-1.2] | 577 487 (98.8) [98.8-98.9] | <.001 | 25 247 (2.4) [2.3-2.4] | 1 048 101 (97.6) [97.6-97.7] | <.001 |
| Spanish | 153 (0.9) [0.7-1.0] | 17 340 (99.1) [99.0-99.3] | 757 (1.7) [1.6-1.8] | 44 345 (98.3) [98.2-98.4] | ||
| Other | 791 (0.9) [0.9-1.0] | 82 336 (99.0) [99.0-99.1] |
472 (1.3) [1.2-1.4] | 35 239 (98.7) [98.6-98.8] | ||
Abbreviations: EHR, electronic health record; NA, not applicable; NYULH, NYU Langone Health; UHealth, University of Utah Health.
a
Selected if the patient did not meet any of the preestablished listed categorizations in the EHR systems.