FIGURE 3.

Summary of responses relating to discussion of epilepsy‐related factors. Respondents were asked whether they had discussed specific aspects relating to epilepsy with a clinician in the past 12 months. Less than half of people with epilepsy reported having discussions with their healthcare providers about sleep, antiseizure medications (ASM) and their potential side effects, and other topics related to risk, such as sudden unexpected death in epilepsy (SUDEP) were discussed even less frequently. Many more caregivers reported having had discussions with their healthcare providers on these same topics. This discrepancy might be explained by differences in self‐reported and caregiver‐reported recall.